I've posted before about my DH and his untreated hearing loss. We just returned from a weeklong trip to the PNW where we have 4 grandkids. My son and his wife were absolutely shocked to see how bad hubby's hearing loss it. He couldn't hear any conversation--and I get that--a house that is NEVER quiet, a dog that barks nonstop and kids screaming all day--but he could sleep on the sofa without any problem through all the noise. Both son and DIL were angry AT ME for not pressing him to get his hearing checked. (As you may recall, if you've followed this) he says that he HAD his hearing checked 30 years ago and they couldn't help him. Refuses to go again. Well--even though I stood right in front of him, said "Can you hear me?" and he responded that he could, I reminded him to get some coats of his out of the closet. We come home, unpack and yep, no coats. Somehow this is my fault b/c I didn't remind him. I have already made an audiologist's appt. One month from today. I haven't told him--b/c I KNOW he is going to kick up a stink and make me the bad guy. He got yet another speeding ticket, which if he had STOPPED when the cop first went lights and sirens, probably wouldn't have been a problem, but he was oblivious and couldn't hear and actually went across state lines and that made the cop livid--so the ticket was really bad. He's on "probation" again for having so many tickets. Pretty soon he'll lose his driver's license, and if that happens--I don't know-- He misses SO MUCH!! He's become even more depressed and withdrawn. He slept much of this trip--due to a lingering cold and also just b/c he is always so sad. My DIL is a dr and VERY tough--ice cold, but kind--she really got after him about how lack of hearing can lead to early onset dementia, etc., and as much as he adores this woman, he was kind of angry (at me) for what he thought was an all out attack on him. (I hadn't said anything to my DIL). I find myself absolutely shouting at him, which has transferred over to my "regular" life where I have been told more than once I am talking VERY loudly. Embarrassing to the max. My DIL said she loves us to visit, but that I talk way too much. I was so ashamed, as I am so used to repeating myself over and over so my DH can hear me. Kind of just ranting. I did make the drs apt. I am going to tell him. My best guess is that he will not go and will be furious with me. Any ideas of how to broach this with love and concern and not get angry? My DIL "yelling" at me yesterday to please STOP TALKING just put me over the edge. I had to go lock myself in the guestroom and have a huge cry. I was shut down completely the rest of the day. Barely spoke, DIL did "apologize" but in a way that meant, "I'm sorry you got hurt, but I meant what I said". (She really intimidates me). Glad to come home and sad to be dealing with this same stupid problem I posted about 3 years ago.
Midkid - Happy to hear that your hubby has relented and will go for the appointment. As others have said, the advancements in this area have improved over the last 30 years. No guarantee that his loss can be corrected or aided, but it is at least worth the try! Hopefully they can find a way to at least help. Whether they can or cannot, at least you can shut DIL up! If not, use a tablet to write on when he cannot hear (suggesting a tablet as he is still with-it and working, as well as likely computer saavy). For others who cannot use/afford tablets, there is an item called a Boogie Board which uses a stylus to write messages (any pointed object, non-marking, will work, even fingernails) and a button to erase the message, which can be used. I got one for mom/staff for those times that she simply cannot hear. I found they have been keeping it at the counter to use. Often she cannot hear the dinner choices being offered. For us older fogies, this is similar to an item we had as kids - I do not remember what it was called, but it is kind of a wax backboard with a plastic cover, used to "erase" the messages/images. Oh, I tried a different lookup method: Magic Slate! Apparently they still do offer these - found a 3-pack on Amazon! I would not recommend this for an adult though... Over time the wax would degrade from writing on it so much. The Boogie Board uses LCD to light it. I believe it was about 25$ and I ordered extra styluses as well as the insurance (cheap enough at $1.12 for 4 years, as the battery is not replaceable.) This saves having to find paper and pencil all the time! Note: It does NOT save anything written on it. There really is no need to, if used for hearing loss anyway. Positive feedback for those with just hearing loss was good (if the person is compliant), but as I noted usage can be sporadic if the person has dementia (doesn't remember to use it or even that they have it!) This is more portable that a white board and does not need erasable markers. It is a little less than the size of a sheet of paper - enough to write a decent message on, big enough to not get lost too easily (I also got the hot pink sleeve for it - they offer several colors, but she likes pink AND it is easier to locate!), but small enough to take with you to visits, appointments, etc.
Otosclerosis:
I became aware of Florence Henderson's hearing loss because my mother was diagnosed with this 30 or more years ago. It is one, if not the only, hearing loss that can be surgically corrected, if treated in time. I wanted to make others aware of this condition as many have never heard of it. Mom was offered the surgery, but as with any surgery the doctor had to mention the possible complications - in this case it was that they only do one ear at a time because if anything goes wrong you can impact balance. THAT convinced her NOT to have this done. What a shame. Complications can occur as with any surgery, but they are likely rare. She could have her hearing today if she had done this!! At least try one - if it doesn't work, skip the other. If it does, go for the other too!
She opted for hearing aids, which for a long time were sufficient. Several years ago the right ear degraded to the point that the hearing aid is of no use. The other ear is not much better now. With regular battery replacement it will work but with dementia now, she forgets to change the battery. She would not hear the doorbell or the phone when still living on her own. Once I had to send the police to check on her (she also managed to turn the volume off on the wall phone.) Several times I had the neighbor check. She would sometimes misplace the hearing aid while still living on her own. I remind the MC staff all the time to 1) replace batteries every 2 weeks (hearing aid provider told me this) and if she does not seem to hear well otherwise, 2) check by holding the aid in a closed hand (don't squeeze it!) If the battery is good, it squeals. Mom cannot hear it but anyone with good hearing will. If it does not squeal, replace the batteries!
Here's what Florence said in this: lifeextension.com/Magazine/2009/10/Florence-Henderson/Page-01
"...Henderson began to notice a loss of hearing. The situation progressed almost to the point of deafness, before specialists determined that a hereditary condition called otosclerosis was the culprit. “In this condition, the bones in the middle ear become soft and sludgy,” Henderson explains. “The nerves get infected, which leads to hearing loss. I had surgery on both ears, which involved implanting stainless steel and Teflon® to help me hear."
Mom's ENT doctor at that time recommended that I get tested as it can be hereditary, but there was no problem detected, and my hearing is still better than many people.
Hearing aids and headsets:
Hearing aids can sometimes help. Yes, there is adjustment to background noises, etc for some. Any good provider can also try to make adjustments for this. Some it does not work for. Some are not compliant in wearing them. Some it does not work for at all. Sometimes one must try different ones before finding the right one (as someone noted, they are 'returnable' within a given time frame.) I mention the headsets as the current doctor tried this during an initial visit where hearing aid was not working (battery needed replacing.) The previous doctor office called me to schedule an appointment for a test because my brother was not smart enough to consider the battery - he just ranted that her hearing was much worse. In that instance she just needed a new battery, but she was already beginning down the dementia pathway, so was not aware enough to change it! We have not tried a headset, and likely she would not want to wear it or might not remember to use it - the hearing aid is a long term memory, so she still remembers to put it in! Because we have not explored the headsets, I am not sure what instances it might be good for, but wanted to mention it as a possible option.
One other thing - the latest hearing aid provider she was using CAN do testing AND does not work out of an office. He comes to the home to provide services, which for a homebound (or possibly someone refusing to go) person is a godsend! When she could not find the current hearing aid a year or so ago at home (visitors found the previous broken one but they thought it was the current one), he came right out that day, saying if he could not fix it, she'd have a new one - either way, she be back in business (one or the other was found by my brother later, so she has a "spare" now!)
Hope that any information provided here can help someone!
Based on my own experience, I perceive there is substantial fear of hearing loss. The unknowns tend to create anxiety, which often shows up in many ways, anger, stubbornness, lashing out.
Does your husband still drive? if so, then his hearing problem is a safety issue. What would happen if he were stopped by a cop or in a major accident? if he is still driving then you should check your auto insurance to see if you need to increase your coverage.
My dad had a huge hearing loss from work. He finally allowed me to take him to get him hearing aids. He wore them for 3 yrs and it really didn't help much. He would complain it's too loud and take them off. He read lips as a way of compensating...
Maybe an electronic or reuseable/erasable notebook would help??
I'm equally concerned though about his seeming oblivious state. How can you be a decent driver and not see a police car with lights and sirens behind you? He must not be checking his rearview mirror like a good driver. That would be downright scary to me as a spouse. If you know you have a hearing loss, how can you miss a flight? I'd be on hyper-alert, knowing I couldn't hear what was going on. That concerns me as much as his actual hearing loss. It sounds like he's still working, which is another reason to get his hearing checked. His co-workers or customers must tear their hair out if he's as difficult with them as he is with you. I really hope you get some good news and I really hope if he gets aids, he'll wear them.
Both of my folks had hearing loss. My dad had major loss from his work on planes in WWII. He had expensive aids but wouldn't use them. I refused to talk to him until he put in his aids. So he'd put in one. ARGGGGH. My mom had aids but never wore them. Her hearing loss wasn't as bad, but it was a pain for me to deal with. My cousin was hard-of-hearing and his whole family were VERY LOUD talkers and are to this day. I wish you good luck.
I'm glad your husband is going to the audiologist. It's not going to be easy to fall out of the habit of shouting or for your husband to learn to read lips but it will be worth it. He need not perfect adapting to deafness; he just needs to make efforts.
Also, check out what resources your local library has for both of you. Dementia is not inevitable! Reading is an excellent exercise for the brain. Good luck!
It is possible that 30 years ago there was nothing that could have been done to greatly improve his hearing but now , today is another story.
You might want to tell him that it is part of his annual physical and just like a colonoscopy it has to be done.
All tests are scary especially when you anticipate the worst results.
And yes he will probably get angry but he will get over it. Just explain that you love him and want to make sure that everything that can be done is being done. Wouldn't he do the same for one of the kids or grand kids? You would leave no stone unturned looking for an answer.
Have you brought home brochures for him to read.
You can try explaining to him hearing aids have come along way
in 30 years.
Maybe you can have his doctor have him go for part of his annual checkup.
Does he know how to use a computer?
If so maybe he can read up on the improvements that have been made
in 30 years.
Good luck
Yahoo Midkid, that is great news that he is willing to see if new technology can help him, I bet he realized just how vulnerable a deaf person can be after surprising mom.
May God lead the Drs and give you and hubby your hearts desires, hearing.
I have to be honest, there are still times I can't hear --- they aren't perfect. Foreign accents lose me. TV shows with loud music for effect and I lose the conversation. If I am in the back of a car and the conversation is from the front, I am lost. For a woman, hearing aids can easily be hidden, but for a man--- well their short hair shows it and if he is still working, he doesn't want to 'look like an old man'. Still, if he gives them a fair chance, he will be happy to be part of the conversation!
Let's hope all of the advances in this area will give him the joy of sound once again. If not, get a white board and marker . . . At least he isn't fighting this time.
Hubby will probably go to the appointment and buy the hearing aides and they will improve his hearing BUT WILL HE USE THEM? My hubby's are collecting dust. When he can't hear me he tells me to put mine in as if that would help. i do wear mine most of the time by the way
A couple of days ago, DH had to go by his mother's to fix her new hearing aids. She is almost 100% deaf and has been for many years. Has had minimal success with several types of aids, but she's really, really "dotty" and can't follow a conversation w or w/o hearing aids..anyway, DH said he walked into her house, shouting for her, and finally gave up and sat down at the table to take a look at her new Bluetooth compatible aids. She walked in about 10 minutes later and was kind of shocked to see DH, she hadn't heard him calling her, hadn't heard him walking around....anyway, I guess it was sort of a wake up call to DH. He told me about the visit and how hard it is to get her to understand things--and I commented that deaf people struggle with not "getting" the whole picture and they can become very insulated to the world in general. How dementia is higher among the hard of hearing..I couldn't quote the exact source, but he didn't ask me to....
SO...
I plunged in and told him I had pre-emptively made him an apt on the 28th of March with the clinic group he is already a patient with. He agreed to go. No fuss, no fight, no nothing. I told him that if there was absolutely nothing that could be done to help his hearing I'd never bring it up again. (I fully expected a LOT of pushback--and I got none.)
So---just gonna hold my breath and hope he can make this apt a priority. He travels a great deal, but if he knows way in advance about drs visits, he can make travel plans around them.
Fingers crossed--they will be able to help him. I KNOW hearing aids are expensive, but hey, I didn't want to go to France with a deaf man this year anyway!!
And, he actually confessed to me that the ear with the nerve damage has actually gotten better over the years (!) and now his hearing is equally as bad in each ear. This gave me hope as it's possible that the original dx (over 30 yrs ago) was that he would lose 100% of the hearing in that ear.
Positive thoughts our way would be appreciated!!! I know this may be life altering for him....he didn't shut me down as he usually does---that's HUGE!!
DIL has obviously not met me. "I am not having IT done unless you put me out." I would not ever consider putting you out you are too big risk. "Well Dr X said he would' "I am head of anesthesiology and I am not going to do it and Dr X is not here today" "OK then i am going home right now" and I did.
I too have a DH who is deaf ( and so am I) he got his hearing tested and brought hearing aides at great expense and then traded them in for another pair at even more expense. Now of course he won't wear them, even forgot to take them to his last audiologist's appt.
I have to yell at him then he replies that i should put MY hearing aids in as if that would make him able to hear him better.
Getting deaf people to help themselves is very much a loosing battle.
Try making a letterhead for the audiologist and write.
Dear Mr DH,
An appoinment has been made for on 00.00.2018 at 10.00am Please arrive ten minutes early and bring your insurance card and co-payment plus identification and a list of current medications.
Failure to keep this appoinment will result in a cage of $00'
Sincerely
Nurse JKE RN for Dr X.
You can actually mail it so he has to open it himself. You might want to hide somewhere while he opens it, but he may get the message and go.
Or you can go to Amazon and but one of those devices they sell for about $50 and see if he will try that.
Things have moved on a lot in 30 years.
IF the audiologist tells us that there truly is nothing that can be done to help my DH's hearing loss, I will accept that and learn to live with it, either he will have to learn some kind of sign language or we will have to communicate by writing. It's the fact he went in to an ENT 30+ years ago, was told he had nerve damage and he'd never recover hearing in his right ear and has NEVER broached the subject again with any dr in that period of time that makes me sad/angry. HIs right ear is almost 100% gone and the left is about 60-75% gone. These are "guesses" on my part--- He's missing SO MUCH!! Our sweet grands with their high pitched little voices talking and singing and being themselves--he has to watch all TV with the CC on, he simply cannot hear what is being said. He's missed flights b/c he doesn't hear the announcement to board. He misses cops following him (he's a speed demon) and he misses all sirens, road noise, etc. Misses a lot of what is said on jobsites--and that's becoming problematic---
I was at the airport last night (it was NOT busy, nor noisy) he was wandering about, looking for me, and I was waving and semi-shouting to him that I was "over here" and he looked right past me and could not hear me at all. Looking at him wandering like that--kind of a clueless look on his face, suddenly I felt absolutely heartbroken, he looked so old and depressed. He's 66, that is NOT old.
I will pick my moment to tell him he has this ENT/audiology appt. My best guess is he will be livid that I am being intrusive.
And yes, the "kids" had no right to harangue ME about dad's health--good grief, the man is an engineer and is quite brilliant--but when you cannot hear, you tend to look lost and well, kind of rude as people talk to you and you don't even respond.
And yes, DIL could be a lot more compassionate, but she is a very cold person. I love her and she is good to my son. She's just a ice queen. She does not suffer fools and believes in telling the truth--no matter the cost. It's a sad joke on our family that it hasn't been a real visit with my son's family until they have made me cry.
Her patients are 100% cooperative: she's an anesthesiologist.
Maybe DH would read about the advances in technology over the last 30 years, it is astounding, ask Drs office if they have resources or ideas about the advances.
It is so difficult to have our DH be resistant to care and be angry but, the family getting angry is like kicking the dog cuz you got a flat tire. Maybe you can explain to your son that a PHD doesn't give you all the right to be hurtful, nor the understanding of your day to day life.
We love you and are so sorry you got used as a scratching post.