Our finances will quickly become a mess if I have to quit my job and forefit that income to care for my fiancee who has relapsing/remitting MS. I don't know how to deal with taking care of the family and taking care of her while still having a full time job. I need time to sleep in-between. Is there some way to get financial assistance for me the caregiver? She is 40 so she does not qualify for elder care anything. Any advice would be great
How are you living on a part time job? Are you on welfare and getting food stamps? If you quit your job, who is going to take care of the children? If you quit your job how are you going to afford to live somewhere? You want be able to draw SSDI and her check will not be enough for the two of you to live on. I hate to say this, but maybe she needs to look into medicaid and go to a nursing home. Does she have any siblings that could help ya'll any? This is a total mess with no easy answers I'm afraid.
Quitting one's job to become a caregiver is quite rarely the answer, in almost any situation.
http://www.nationalmssociety.org/Resources-Support/Insurance-and-Financial-Information/Social-Security-Disability/Social-Security-Disability-Insurance
http://www.nationalmssociety.org/Resources-Support/Insurance-and-Financial-Information/Social-Security-Disability/Social-Security-Disability-Insurance/Frequently-Asked-Questions-about-SSDI#question-How-much-income-can-I-earn-and-still-receive-SSDI
Second, has she looked into applying for social security disability? That is a viable option.
I have found some sites that may helpful.
mscaregiver/category/ms-caregiving/
nationalmssociety/Resources-Support/Family-Matters
mssociety/en/help/iAmaSpouse.htm
http://www.nationalmssociety.org/Resources-Support/Insurance-and-Financial-Information/Financial-Resources/Financial-Assistance-Program