I closed down my business in 2008 to be a caregiver to my dad and my wife. My dad was in late middle stage Alzheimer's and in memory care. As he progressed he became more and more aggressive and combative which meant I was receiving calls to come quite often. At that same time my wife was diagnosed with "early onset" Frontal Temporal Dementia. Soon she progressed to the point that it dangerous to leave her unsupervised. The economy was crashing and I needed to devote a lot more time to business and that may still not have been enough, or I could choose family first and take care of them. I chose family first. My dad passed away in 2014 and my wife has progressed to the point that I have had to place her in memory care. I visit her multiple days a week.
I will get thorough it but the cost of doing this has been substantial and it has required me to alter my retirement plans considerably. I so am thankful that I was financially able to make that decision and not worry about how to pay the bills. Over the years though, I have met and watched several families struggle with the same decision. During this time I realized that their needs to be a new type of long term care insurance for income replacement for caregivers who are taking care of loved ones. The cost of memory care locally is well over $7,000.00 per month. I suspect that the payouts would be less than half that amount to just replace the income of the average family member/caregiver.
But besides that one of the big issues is that LTC insurance needs to be profitable to stay in biz & it's the premiums paid in that are supposed to do that BUT with low interest rates these past few years those premiums aren't making $ anticipated AND add into this so often policies done before 2001 are having to pay out more than they ever anticipated, so LTC underwriting is not very profitable.
In clearing out my moms house (50+ years), I ran accross all sorts of insurance ltc solitications, I'd say half of the companies do not exist anymore. JDP, Your actually fortunate that your parents policy was consumer friendly & whomever your parents insurer was stayed in business & could pay put over 400k on a 48k investment. 400k out on 48k in is not a viable business model.
My crystal ball is out for service but my prediction is for a reset on end of lfe options in the US. Oregon style death laws will be the new norm. There's already a pretty definite hemlock society subterranean happening in US to support law changes. After watching my mom on hospice 18 mos in a NH get tinier & tinier and be living in only a struct technical definition, I have no desire to live a long life without being competent & cognitive. I'd do the Sol Roth walk to death with no qualms & my family knows this.
Medicaid just isn't supportable by state budgets. My state -Louisiana - is facing 750M shortfall for this year & something like 1.4B for 2016. Jindal was the most fiscally irresponsible governor ever. Edwards has quite a challenge. There's going to be very hard decisions made or serious downgrading. What LA does will be looked at by other states planners to do or not do for their state for medicaid. I'd bet that: -the required 20 hrs work for food stamps will be put into law. Gov Bryant in MS signed this in last mo & 40% cut in costs of SNAP is anticipated in MS by EOY. LA could easily expect the same savings if not more.
- house & car as exempt medicaid asset for NH medicaid will cease unless they can establish reasonable return to home....applicants will have 6 mos to have it exempt so it can be sold (then off Medicaid due to proceeds from sale) or their ineligible for Medicaid if house is kept; If family has exemptions or exclusions those will need to be documented and determined if valid before the elder is eligible for Medicaid, as opposed to after death determination.
-reasonable right to return, I'd also bet the states will require some sort of documentation and sign off by the elders physician as to their ability to return. Kinda like the TX form H1280 for optional benefits on homestead. If you can't get it, the property is non exempt.
- the few states w/tight property laws (Lady bird deed states) probably won't change as to house being exempt for lifetime.
- the medical at-need documentation to be medicaid eligible for skilled nursing will be more defined and require 2 physicians (internist or gerontologist) signature (like what already is in place for hospice by Medicare).
- Medicaid Pending will not start till a set # of days at the facility private paid. Maybe 20 days as so many enter NH as a Medicare paid rehab benefit. Or 60 days as most application reviews are supposed to be completed within 60 days.
Doing these maybe decrease applications by 1/3. A win for Medicaid cost containment. It will not be pretty.
As I stated, Medicaid is there for those who need it thankfully, but the money would go much further without the artificial “impoverishment” of many who could pay for all or at least some of their expenses.
The biggest problem I see is evident just reading the question on this forum alone. Many people, maybe most think that medicare and/or medicaid will pay for your care when you get old including the cost of a facility or home care. They are totally surprised to find that is not true. With the number of elderly increasing and the number of working taxpayers being static at best....as I said long term the numbers just do not work. I think is about three or less working for everyone on medicare. You just cannot tax three people enough to pay for one persons care.
As for solutions.....yes I have one. Knowing what we know now, why not require everyone to buy an LTC policy the first day they go to work and maintain it during their whole working life?
We can keep a body going when the brain has given up or we can keep a brain going when a body has given up....but should we ? After watching what I have watched and am still watching...that's the question that haunts me.
But what are the alternate solutions? Legislators will fund pork barrel projects for constituents before considering something more basic such as health care funding for the masses. Look at all the cutbacks Medicare made because of "sequestration."
Care for the aged is a major issue, a critical one which I think will become more so, but I also don't have a good grasp on alternatives, other than providing more opportunity for stay-at-home care for those who can still live in the community.
Care facilities are profit oriented; they aren't going to sacrifice their own financial needs for those of elders.
Frankly I do not see how medicaid can continue to pay for everyone who needs to be in a facility. I had several employee's and the medicaid insurance deduction is very small. If they are truly in need....that's what it is for and I am glad its there, however with so many now being artificially "impoverished" (my attorney's term) thru legal maneuver's so medicaid will pay 100%, the numbers just will not work long term. In my state, the department of health and human services already spends 75% +/- of its yearly budget on medicaid alone.