First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
If you feel it's "YOU", then you'll feel happier wearing it and the jacket sounds very glamorous!!
On to better things - a wedding update please!
How’s the bride? 👰🏻♀️
What did you decide to wear? 👗
My eyes are worse, I now have glaucoma and worsening cataracts from the steroid eye drops. I saw a rheumatologist who agrees with the Opthamologist that this Uveitis is permanent. I have to go on an oral immunosuppressive drug now to try and control the eye inflammation. I'm waiting for results of a genetic test to determine which med to go on. I'm nervous because ANY AND ALL meds affect my central nervous system and worsen my dizziness which is still going on. I'm on 2 different glaucoma eye drops now and can't see more than 3' in front of me. Everything is very very blurry. I see the optometrist again for GLASSES soon....I can't live without seeing. But fortunately my near vision has improved. Go figure.
The immunosuppressive drugs raise the risk of the cancer coming back, too.
I'm walking a lot more with my cane, so my stamina has improved. I don't lie down in the late afternoons much anymore, and I'm able to cook more and clean up too.
Thanks for always asking GG.
I think your story is typical, don’t you? The more storage people have the more likely they are going to fill it up!
I wonder how many people forget what they have in storage.
For some people it’s still not enough storage space and they rent storage. That’s crazy to me to rent additional storage. Just get rid of the excess stuff!
I was listening to a program about organization. The person said, “Stop saving things for your kids! They don’t need it or want it due to having more modern tastes in items. For the most part, think that’s true.
Enjoy living near the beach! I would absolutely settle for less square footage to live near the beach!
I wouldn’t miss having an attic because I never go up there.
Do you have treasures stored in your attic? I have never been in my attic! LOL 😝
I have seasonal decorations and stuff from my children in mine. We don’t have basements here.
Attics, basements and garages can become cluttered.
My neighbor has been asking her husband to clean out the garage for decades! He has stuff in there from when his parents died several years back. Plus, all of his woodworking stuff. He builds beautiful bird houses.
I think most people use their garage for additional storage rather than cars.
GG, shame about the missing Roseville. Many folks just do not realize the value of things, especially things they've had sitting around the house for decades! I once bought a Roseville piece myself at a yard sale for $1, but it has a chip on it. It sits on top of my secretary in my study. For a buck I couldn't resist 😊 Lol to "do you have anymore ugly vases?" 🤣😂
I at the times made wind chimes out of wire, beach glass and beads. Had a whole fishing box full of beads. At the Estate Sale I found a long long strand of amber colored beads. All different sizes and shapes and quite lovely. Took it home and showed my mom the lovely "plastic beads" I found for next to nothing and she said "You just bought yourself the largest amber necklace I have ever seen. Sure enough we did the little burn test and smelled pine. I sold them at a collective my brother and I at that time sold pottery in. Can't remember what I got but it was very GOOD price.
That's the fun of the hunt.
In her book The Volcano Hunter, Susan Sontag gives one of the best descriptions of what "the hunt" is for us hunters, what the FIND is, what we feel in our bodies when we SEE THE PIECE. How we go about staying calm.
I once bought a pair of 18k gold Italian gemstone earrings from an APPRAISER for $5 which were valued at $985. Garage sales are notorious for selling treasures for trash prices. I ask no questions, just pay the asking price. Ever watch Antiques Roadshow? 😊
I'm actually waiting to see if we got tickets to the event coming to Littleton in May. Tickets are given out randomly.
Have you followed any of the treasure hunting from sunken ships?
I have watched programs and read articles about the divers that go after those treasures from shipwrecks.
It’s fascinating to see what they find. It’s a lot of work for the diving teams but it’s also a passion for them.
I'm just returning to this forum since being off since November due to dealing with a care giving urgency ...I'm still a bit drained and just trying to settle back in my own life. Now catching up on this site and I love reading your latest words...very inspiring! Yes, you are tough - and I think living in the MOMENT is great advice for all of us!
Happy to hear about your latest findings at the estate sales...I hope you continue to find great treasures!!
May God continue to bless and heal you.
Golden, the good news is I can see better up close! I'm back to estate sales and found a pair of 14k gold earrings for $3. Large round discs. Ka-ching.
Thanks for always being here Colleen.
Geaton, I'm grateful for LIFE, even in a compromised state. It's not like I'm paralyzed, which could've been the case. I'm tough. Just screw all this crap. I'll push thru it and live in the MOMENT, which is all any of us have anyway. The NOW. For now, all is well.
I will be praying for you.
So glad Chuck is doing so well. The less said about your ex the better.
We've got to get you back to doing estate sales! 🎇✨🌟
Praying for you, and for EVERYTHING to just calm down!
Sending hugs to you!
It’s quite tiresome to frequently visit doctors when dealing with issues.