First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
So apt. And I am so very happy & relieved for you Lea.
A little piece of magic.
Golden, I'm not worried about upstaging the bride......my dress is just very voluminous and I'm not sure I want that bold of a look on her day. Plus I keep thinking.....omg, just to use the bathroom in that thing 🙄
Her colors are fall colors ....rusts, oranges, greens, etc. She has not seen my dress, no.
I saw Dr C today and turned down the 2nd scheduled IVIG. I'm sick of feeling horrible for 2 weeks afterward and sincerely question their effectiveness.
He was showing me my clean PET scan and comparing it to the one last January and omg. That my own immune system was able to kill off THAT MUCH CANCER is amazing. All in 2 double treatments.
He said it's possible the cancer will not come back! I'll have PET scans every 3 months for year 2, and if they stay clean, we'll move to every 6 months for the next year.
It's all in God's hands, but it was a huge relief to hear that the cancer could stay in remission for good. Amen.
Can you put a picture of your gown temporarily on your profile so Alva can see it? Or can you tell her an alternative way to search for it? If not, no worries.
If so what does she think???
What are her colours for the wedding?
I understand you don't want to upstage her, but, gosh, lea, with all you have been and are going through I think you deserve an opportunity to shine.
Surely, she will be a beautiful bride and shine in her own right!
Otherwise, what's the point? Be bold. Be beautiful. Shine!
You are going to look amazing in it. Very well done!!! You aced it!!!
It’s gorgeous!
I love the color and the details and the cape, and EVERYTHING!
You will look beeeutiful in it!
Above is a link to the gown. I did try it on and it's too long, but other than that, it looks great! In real life, it's identical to the picture. It has a silk column dress with sleeves underneath the georgette fabric with a tie at the waist. The top is crusted with jewels and gold beads. If you look at the video, it shows how you can see the fitted dress silhouetted underneath the voluminous fabric. I actually have a pair of dangling earrings that match the jewels and gold beadwork Exactly! 😁 Chuck loves it.
What do you think?
I want to hear about the gown.
I’m sure it will be a beautiful wedding and that you will look fabulous!
Awesome about the gown. Do try it on and let us know more about it. I think you will look spectacular with all your bling.
I ordered a gown online for DDs wedding and it's so gorgeous I'm afraid to try it on! What if it looks awful on me? Or doesn't fit? So it's hanging up in the bathroom ....it was stuffed into a Priority Mail bag!!!!!......getting the wrinkles out of the georgette fabric. I have to suck it up and try it on already. 😂🤣😅 Wish me luck.
Big hugs!
We went to 3 estate sales on Weds but there was a lot of snow and ice on the streets, walkways and driveways/stoops, so it was tricky for me. I'm wobbly without snow and ice to contend with! So we didn't go to any more the rest of the week. I've been very dizzy anyway, shocking I know. Not. Same chit different day for me, unfortunately.
You have brought a smile to all of our faces. It’s lovely to hear that you enjoyed a steak dinner. I know that your family was overjoyed to go out to dinner and celebrate your fabulous news.