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My 84 yr old father has COPD and has refused to bathe, wash, or even wipe after using the toilet. I do not live with my parents yet, but my 82 yr old mother will be having surgery soon and I will become the sole care provider for both. She has enabled him always. He drops fecal matter out of his pants and if pointed out to him he will pick it up and put in the trash, no reaction or comment, and just walk away. The house is so unsanitary and I will be addressing that 1st. But how can I deal with a difficult, noncompliant parent to maintain cleanliness and hopefully, reintroduce some semblance of quality of life when he has no interest in anything but watching tv and sitting in his own filth?

Please don’t expect or allow your mother to live in such an environment to recover from surgery. This is asking for infection and complications. Your dad isn’t changing, he’s mentally ill to be okay with this, or has dementia. Either way, it’s an unsafe situation. Even if you’re allowed to clean it will immediately be undone. I hope you’ll never actually move in, it will have awful consequences for your own well being
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Reply to Daughterof1930
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Your mother cannot return to that house after her surgery. No one can recover from anything in unsanitary conditions of filth and squalor. Take her to your house.

Secondly, if your father is so out-of-it that crap falls out of his pants and he'll sit in his own filth, send him to a nursing home for a respite stay. Medicare pays for up to two weeks respite stay to give caregivers a break. The two weeks will at least give you time to make some plans for your parents, get their place cleaned up, and your mother will be able to rest a bit and recover some from her surgery.

Talk to your father's doctor and tell him what's going on. His office can help you get respite placement for your father. Once he's in a facility, that can made that permanent. His life in a care facility won't be much different than what life is now for him. Sit, watch tv, eat, sleep, crap, and refuse to bathe. Only your mother won't have to live in it.

Please talk to your father's doctor which will be a help to you and your mother. Good luck.
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Reply to BurntCaregiver
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If your mother is having surgery, she should not recover in such an environment, or sleep next to such an unsanitary man, first of all.

Your father obviously suffers from dementia or mental illness in addition to COPD if he refuses to clean his behind, for petesake. That's not laziness or lack of caring, that's a brain malfunction.

I would take mom into your home for her recovery after surgery, and then call APS to report dad. Let them see how he's living and decide what to do with him next. You cannot care for him......he needs a psych evaluation.

Best of luck to you.
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Reply to lealonnie1
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cover9339 Oct 29, 2024
You may not have seen the Youtube short of the man getting off the escalator, walking and pooping, and a guy a few seconds later getting off the same escalator stepped in it and fell into a luggage display. The pooper is a younger man.

or stories from some married women, where the husband doesn't wipe (or wipe well) and leaves skid marks on the bed.
(3)
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How can you deal with this?
Really you can't. Nor can your mother. And nor should anyone try to.
Your father has sadly reached the stage where he can no longer do this, and where he needs not one elderly woman caring for him but rather a team of caregivers and several shifts of them.

The hard decisions are here. The talk with your mother about what is doable. Dad should be in respite during this surgery, and its rehab, and mom should not be resuming this care. IMHO it is time for placement and I think you recognize that. If you have POA for these two, with mom now having surgery, it may be time for you to act. I am so sorry. No one will be made the happier for this, but it isn't any longer about happiness but about safety, about bedsores, about sepsis, about health.
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Reply to AlvaDeer
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BurntCaregiver Oct 30, 2024
Well said as always, Alva and true. Really it's not about what they want or makes them happy anymore. It's about what is safe and practical for them.
(5)
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Please allow your mother to go to rehab after her surgery so she can heal properly and not get any infections from the very unhealthy environment your father has caused.
Your father obviously has some form of dementia, but I also believe that your mother too must have some kind of mental decline/dementia, as who in their right mind would opt to live in such conditions?
So when your mother is in rehab, let the social worker know how unsafe the living conditions are in her home, and that it would be an "unsafe discharge" if they were to let her return home, and then allow them to find placement for not only your mother, but your father as well.
Both of your parents now require WAY more help than you can provide, so please get them placed where they will be taken care of and safe.
And of course if money is an issue you can apply for Medicaid for them both.
I wish you well in finding the appropriate facility for your parents.
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Reply to funkygrandma59
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cover9339 Oct 30, 2024
Interesting you mention this. There is a resident in the facility just like this,

One funny interaction he had with the aide was her asking if he had any bowel control, to which he responded "it just fell out" Lol. There was word that he ruined seat cushions in the smoking area, didn't phase him.

He goes out does his smoking, goes back to the room, waits for meals, then repeat. He likes to yell where a seat at, where is the food in the dining room, in short he is living the rest of his life on his terms.
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There is something wrong with your Dad. No normal person acts like this. With COPD he could be showing signs of Dementia. Once Mom is out of the house, I would call APS and have him evaluated.

I would not care for a man like this.
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BurntCaregiver Oct 30, 2024
@JoAnn

His doctor can evaluate him and get him placed fast even if it's ony for a temporary respite stay.
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rebekni: Most likely it's time for facility living. It's very toxic for him to be picking up excrement and also sitting in it. This is beyond your elderly mother's scope of care.
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Reply to Llamalover47
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Tell your mother this is too much care than you can provide. Your father isn’t going to listen to you because in his eyes you are a child and he’s the parent .

They both may need to go to assisted living or SNF , depending on their care needs .

If you jump in and do for them they will believe they are fine to be home. Do not prop up a false independence . You will be living in THEIR home . You are not going to change how they live .

Tell Mom you will NOT be taking this on . You can not take care of both of them , especially your father . He isn’t going to cooperate .

If mom is truly independent and can live at home alone after post surgery recovery ( hopefully rehab ) then she could potentially live at home . Dad , no way , he may need SNF due to his uncontrolled incontinence .

However , I personally think Mom may also have dementia if she’s willing to live like this .
IMO , they probably both need to be placed .

Their County Area Agency of Aging can send someone to the home to do a needs assessment to determine the level of care needed. Call them , get a social worker involved.

Like already said APS is a last resort as well if needed. After Dad is out , hire professional cleaners using parent’s money .
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Reply to waytomisery
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BurntCaregiver Oct 30, 2024
@waytomisery.

Don't allow a 'needs' assessment of the home to be done by any government agency unless the goal is to get person placed in LTC. These agencies normally make unreasonable demands on a person's home and family when there doesn't need that much done to make the home safe. They tend to be hospice happy as well and will get everyone in even if they don't need it.

The father should get put in LTC respite then that should become permanent. If the mother wants to go into care with him she can. If she doesn't then another arrangement can be made for her depending on how independent she still is.
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You ask how you deal with a difficult, noncompliant person while getting them to conform to "your" standards of cleanliness and standard of living. You don't.
Your 84 year old father is unlikely to change his habits - for you, or anyone else.
He sees no need to change. And, honestly, he doesn't have to.
I strongly urge you to consider NOT moving in to their home to be the sole caregiver for 2 parents! Please look into other options, such as having a home health aide come to the home. Even a housecleaning service every couple of weeks.
Your 82 year old mother should be transitioned to a skilled nursing rehab facility after her surgery. There, she will get the care and help she needs before returning home to resume her usual lifestyle. If your father is unable to take care of himself while your mother is away, and I'm not referring to living in filth, but if he is not independently mobile, or can not feed himself, or can not get to the toilet on his own, then -
1) You can stay with him for a while to help him, but expect it to be very uncomfortable for you. You may try cleaning the home to make it more habitable for you, but do not expect him to change his ways. You will quickly grow resentful and tired of this!
2) You can hire (on parents money, or using whatever benefits they qualify for), a caregiver, or multiple caregivers to check on your dad, help feed him, do simple cleaning, and help him with toileting.
3) It is probably time to start looking at care facilities in your area. Even if your parents can continue living independently at home for a while longer, you will feel better knowing what alternative living options are available to them. You can call a few and schedule a tour.

Just remember, watching tv all day while sitting in his own filth may be exactly the quality of life your dad wants. That may be disturbing for some, but it is not necessarily wrong. And it is not something you can change without removing him from his home.
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Reply to CaringWifeAZ
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Your parents are aged 82 and 84 and are living alone, surviving in filth more or less OK. Your Father does whatever he likes and your Mother picks up after him. They seem to get along living like that, and that means that neither of them are going to thank you for coming in and turning their lives upside down. It will be very difficult for you to avoid doing just that, and in fact most of the responses so far assume it. So do you: you want to “maintain cleanliness and hopefully, reintroduce some semblance of quality of life”. It will turn YOUR life upside down as well.

Your mother needs surgery. What sort of surgery? Some is major, requires long major care afterwards, some does not. If it’s major, NH care in the short-to-medieum term might be appropriate. If it’s not major, perhaps think of ways to cope short term WITHOUT you moving in. They can hire carers, who will not be personally involved – even if they disapprove. If you move in, it could well destroy your life and your relationship with both of them. Don’t just assume that you HAVE to do that.

One more thought: Could you get APS involved BEFORE she goes for surgery, and before you are seen as having taken over responsibility?
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Reply to MargaretMcKen
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