I have searched the internet and cannot find information out there that even remotely describes the problem breathing exhibited by my mother-in-law. Before I describe it please know that she regularly sees and cardiologist, a primary care physician, and has in the past 5 months seen a pulmonologist and hematologist. The only diagnosis Interstitial Lung Disease(ILD).
Now for the description. She can barely breathe. All breaths are frequent short gasps, with audible gulping sounds. She sleeps with a bipap and oftentimes asks us to place it on her during her waking hours.
Has anyone seen someone with this in their own family?
Please share with me if you or someone you know has had a brain injury and now their breathing is
Good luck.
I noted that you said ILD was the “only” diagnosis. Consider that how a person gets oxygen is through the lungs, ILD wipes out that ability. The lung surface is damaged and those people are gasping for air. If lungs are affected so is every other body system as the lungs provide oxygenated blood to the entire body.
I am sorry both she and her family are going through this awful diagnosis. I would consider having hospice evaluate her soon to make her comfortable to the end of her life journey.