Please share ONLY positive experiences with long-term care facilities for your mom/dad. It is a hard decision and I read already millions and millions of bad stories, but there should also be good ones....?
In-home care is impossible in our case. It's too expensive and having dementia, mom should be watched 24/7. She was living in my house for 15 years. The last two years were a nightmare before she finally got aspiration pneumonia because of never listening that she should not eat solid food. Now either I should quit my job and completely abandon my kids or she should be in a facility. (90 years old, dementia, dysphagia problems, hypertension). All money that I have will be just for one year living without a job, then what? I will be without insurance being only a year ago a cancer patient.
She is now in rehab and even now I dont have a quiet life, because I am going there every day, checking on her. I have no idea how I can manage all that at home. Her mood is going up and down every day. One day she is alert and nice and another day she is completely out of mind, asking 60 times per minute the same questions... I visited already several NH in my area, some nice, some not. I put her on a waiting list for a good one, but I need some reassurance that nursing homes can be not so bad...Thanks and sorry for a long story. And I am practically an only child. (This is another sad story, as her son does not want to help at all.)
After my dad died, three of the nurses came to the service. So I would say, yes, there are definitely good nursing homes with caring and dedicated staff.
Best of luck to you and please keep reminding yourself that you are doing the best for your mom that you can. Take time for yourself or you will be too burned out to help her.
They had her dressed and ready for her doctor appts, pre-scrubbed her with the iodine before she had surgery, and gave her dessert with every meal to make her happy. When she tried crawling out her windows when she thought she saw her car in the parking lot, they moved her room, furniture and all, to a courtyard view so if she did go out, she'd be within the fence (we were on the other side of the country with our teens and unable to come back). They have suggested what clothes to buy, how to get her to use a walker, and basically, made her one of the family, and us too.
Mthr is no longer verbal so there is a language barrier too, but the staff pantomimes to get through. She has a smile on her face always, and even when she is mean they like her. It's as if the staff is talking about a different woman when they tell me about her - she was horribly abusive, but now that she's on the right drugs is actually nice to them. (If only she'd had those drugs 60 years ago!).
It's perfect for her and for us, and we are so thankful. Part of this was realizing we had to let go and let the facility do what they are good at. Part of this was accepting she needed drugs for her psychological needs. I ask what do I need to get for mthr, and the manager tells me. I am good with that as the manager has seen hundreds of patients come through, and this is still my first rodeo.
She was also for all of her life that I can remember, a severe agoraphobic and severely anorexic.
She had a hemorrhagic stroke at the age of 85, refused to stay in the hospital for more than 3 days, and sent me home to my husband after she’d rehabbed herself for a week. She managed to live by herself for the next 5 years until a badly broken hip sent her back to the hospital, and following her hip replacement, it was clear that she was too confused to return home.
My home was “ideal” for her care, so following 6 weeks in rehab, that’s where she came, and the next nine months were spent caring for her night and day.
My 2 high school aged kids, husband, and I threw ourselves into her care, and for a short while managed OK. That was quickly followed by her descent into a period of increasingly belligerent and negative behavior, towards her cherished grandsons, adored son-in-law, and me, her only child.
After sleeping next to her on the floor for months, she became an even more significant fall risk, and I became a zombie.
In tears, we decided we’d have to try residential care. BEST DECISION WE EVER MADE FOR HER.
The closest local placement was a private nursing home where she’d had her Medicare rehab. She would have therapists and aides whom she knew, and the place was clean, bright, and pleasantly busy.
She entered as self pay, but would have become Medicaid eligible when her personal funds were exhausted. It cost several hundred thousands of dollars, all the money she’d saved from fourty years of marriage, but the money was all hers, and to us, worth every cent.
The staff loved her and included her in everything, the food was good, and she THRIVED. I remember an evening party with entertainment we all attended, and she sang along with the WW2 songs.
I too needed to request changes or extras once in a while, but I was almost always grateful for all that was done for her.
We describe this process as “.....making the best choice from a selection of terrible choices...”. But sometimes good things can happen too.
Once mom got into the memory care, she actually knew who dad was. Dad always took care of the yard and worked. Mom was your typical 50's housewife - cooked, cleaned, took care of everything. Once she got sick, dad had to learn to cook (some), hand out meds, laundry, etc. He wasn't her husband. When she got to the unit, he wasn't doing that anymore. He would sit and chat with the residents and then mom and dad would go to her room, sit on the loveseat, watch the Andy Griffith show while dad read - just like it had always been. She started knowing him again. Called him by name, joked and laughed again. Best thing for my dad.
We never regretted placing mom in memory care - it was the best thing for her and for us. I would have preferred my mother never got this awful disease but she did and we were lucky to have such an amazing facility in our town.
Mom [wheelchair, diabetic, semi-blind, dementia] was in 1 place for over 5 years & I would not have moved her but for the distance from me as she is now 4 minutes away not 40 - I would recommend something close to you - I spend less in 'visitation time' now than before as I only need a short time in stead of 1/2 a day & I now go about 4 to 5 time a week not twice - I spend more time with her but lose less time in the travel - so if I now go & she is sleeping then I just leave & return later or next day - mom interacts with others & is sociable - both places I would recommend to others
Dad [wheelchair, hip replacement worn out, etc] - was 20 minutes away - his care was great - the staff found his skin cancer which was treated successfully - I would do both mom & him which was basically a whole day as I would see dad in AM, go to a pool over their lunch time for my exercise, go see mom in PM or the reverse - he did not interact with other residents but that was his choice - he was there for 15 months before he passed away
I need to add that I live in Ontario where much of nursing home is regulated like each resident gets a bath 2 times a week, how much each type of room costs, what is included - here I pay $2599.00 per month for a private room in a newer facility & that includes nursing, food, room, recreation, depends, cleaning, heat/AC & laundry ... basically everything but clothes, hair, outings & meds [gov't pays most so mom is about $200.00 a tear that is not covered] - because of the regulations there are not as many differences but the atmosphere can be different but all I visited[10+] before mom & dad went into care seemed to be run by truly caring people - one big difference was that there are some run by ethnic groups so that the food is familiar & there are those who can speak their first language as many loose their 2nd language with dementia but they are not limited to only that group so if that is an issue look around
Yes I would do it again - I'm 69 while mom is 92 [dad died last Aug. at 94] so I physically could not do it - I DID NOT FEEL GUILTY ABOUT THIS & YOU SHOULDN'T EITHER - you also should not visit every day because of several things :
1 - she will be absorbed better into the community & the activities when she has that time free from you
2 - she will be used to you not being there every day so if you get sick, injured, go on vacation or are just too damned tired that day she won't sit there waiting for you
3 - you will need some time to establish your 'new normal' routine in your home
4 - plus some others but you'll find them out yourself
REMEMBER YOU ARE NOT ABANDONING HER RATHER YOU ARE MAXIMIZING HER HEALTH & SAFETY FOR THE REST OF HER LIFE - you will become a better visitor & actually talk about things other than what she wants to eat, her BMs, etc so now you can take her back to when she was growing up, things she loved to do so she can relive some good memories - good luck
Now, he's been in a wonderful NH for just over a year. His own health has improved to the point he's no longer on hospice. The staff treat him so well, keep track of what he's eating and doing. They get him up and dressed every day (which the family couldn't do).
He is encouraged to participate in activities as much as he is willing. He has some social interaction with other residents and staff.
He was private pay for a month while we got Medicaid approved. A large portion of the residents at his NH are on Medicaid, but the company owns a couple more facilities that are mostly private pay residents. I don't know if that enables them to hire and retain better staff, but it might.
My mother-in-law visits every other day, if she's able, making sure hearing aids have new batteries, etc.
Although he'd never admit it, he's far better off there than at home, both physically and socially.
I can’t say enough good things about the staff at that place. There are good places out there!
No it isn't perfect, and I still have to advocate for him. Sometimes things get missed. But overall, he is in a wonderful community. When I take him around the community in his wheelchair like to take him outside, people from all over say Hi to him by name. They actually know him. That's what I wanted for him.
He's not on Medicaid yet - he's on spend down. We got him here early so we had a choice. His move to Medicaid, if it happens, will be pretty smooth.
Ok for the positive, the place my dad is in is private pay they don’t take Medicaid. It isn’t perfect...no place is. However, the staff are good about caring for him. I will say they do see a gentler side of him than I do. Agree with Nomad about the complaining...which is typical that parents will do with their children. I too have to let it roll off and redirect him.
My Aunt, his unmarried sister, was in a Medicaid facility and it was actually quite nice so said the aunt who took care of her finances etc.
you choose the one you think is best and go for it. I agree that it’s best to move straight from rehab. Good advice above on using Google to help locate ones who qualify. Good luck. It’s a hard place to be in, I know. Sorry too that your brother bailed out...that’s not right.