I'm 58. Used to be healthy, happy and
very active. Took care of step dad(was killing mom). Now mom for 10 years'7 living in my house. Things are getting bad . Mom just wants to lay, eat and poop. She digs it out and stuffs it everywhere. Her pillow case, behind her bed, drawers, wastebasket. she is up and down eating all the time. Weighs only 114 lbs. I have gotten ibs, gerd,asthma, rhinitis, copd,sinus impaction(all sinus cavities-need surgery and now they think RA. Limp, terrible pain in hips on down, neck-shoulders. Plus much abdominal pain. All from stress. All i get done is washing sheets, blankets and poopey clothes. She wears depends but will dig out and stuff. We r very close, I never scold just take it a smile on my face. No help from family. Yesterday I had her in tub to wash poop off she was demanding my immediate attention when I was trying to change sheet
I told her if she didn't move more the ER doc said she would have to go to nursing home. She said "no. Way Hosa". Im stuck at home and would want to die except my worthless brother that has had no contact would inherit the little she does have and spend on his delerick kids. He hasn't seen or called in appx 10 years when she stopped paying his mtg. At least I have a wonderful loving Hus
Band......now the question. Can her getting poop on things like door handles ( I have cleaning gal and wash constantly) but still know there are germs left be making me sick or is it just stress? I am so stressed out I was washing something at the sink and I just started peeing my pants, until I realized you just don't do that. Afraid I'd getting ready to strike out. So so sorry, so long,
All nursing homes are not bad places as so many think or visualize. My mother is living in a NH and it is working out well. With what monies she has left, you could pay the NH and then apply for medicaid as funds run out. Taking care of our parents includes taking care of them in a NH as well as home. Also, taking care of yourself is vital. Your mom would want you to be happy. If something worse happens to you due to stress (and this is a realistic possibility), who will take care of Mom? Hope this helps and being proactive just might give you piece of mind as well. Hugs and hugs to you and take care.
You have been so wonderful.....and now it is time to begin caring for yourself again and enjoying life. As 3pinkroses states, NHS are not all so bad....my mother just entered one. Hon, after a year of caring 24/7 and having ONE day off when my sister bestowed some help, I broke. 2 sisters, and only one day off in one year.....and asking constantly for a break. I just lost it....my happiness, my thought process, my warmness, my sense of humor, etc. I attempted suicide and flatlined. Apparently, that was enough to get my sister, who is POA, to "believe me" and get mom into a NH.
Please don't let it get that bad. Please.
We are in the process of placing my dad in NH care. It's a sad decision to make, but I have to accept that the time has come for my husband and I to focus on our well being. If we don't, I can see some serious health issues coming our way.
If it's helpful to you, you can go to Medicare. gov and at the top of the page is a heading called Resource Locator with a pull down menu. Click on Nursing Homes Compare. You can put in your zip code and a mile radius and all NH's in that vicinity will come up for your review. They are rated per the evaluations Medicare does annually. Problems and deficiencies are noted.
We have an obligation ourselves, our spouses, children and grandchildren to take care of ourselves. It's so easy to put ourselves last. My husband worries about my health and I worry about his. He's such a good man and he has been right by my side for the past 7 years of caring for my parents. But, as you know, the years take a toll and we have to have the wisdom to know when we have done our best and reached our limit. We can still love them and be their advocates, but the day in day out hands on work needs to be passed on to others.
I feel sad and guilty. I feel like I'm letting my dad down and it makes me angry at myself that I feel all these things. Still, I know in some part of me that I have reached my limit and my husband has too. So we are moving forward.
I wish you comfort. Sending love and hugs, Cattails
I agree with them all. Start to visit nursing homes and pick one. It' time. If you're feeling guilty, you also have to understand that it's not only unhealthy for YOU to live this way, it's unhealthy for your Mom. My dad used sit in his soaked Depends and stuff them with paper towel, not change his clothes for a week, not bathe, (he'd say he did and put a wet towel in the hamper), and just generally be irritable because it was so hard for him to manage anything, walking, falling, eating etc... He's in a home now, but at least I know he is getting bathed, they make him change his clothes, they make him brush his teeth and so on. He's healthier and now I need to focus on getting me healthy while I still care for my Mom.
Go see a few homes. Hope you have POA. Forget about the money. Do it today.
Luv,
-SS
with psychosis and hiding fecal material is psychotic behavior I would hope that someone would have the where-with-all to put me in a humane Nursing Home. Meno had a habit of pulling one strand of hair from the back of his head and looking at the follicle then dropping the hair to the floor. I noticed a bald spot and a clump of hair behind the head board and went to his Psychiatrist the very next day. Meno was bored and after a couple of sessions with his palliative care psychologist we decided to buy him a used microscope and he spends hours finding things small enough to put between slides that have been ground down so they have no sharp edges. Could it be your Mom is hiding fesces because she cannot hold her bowels and is ashamed? Can she make it to the bathroom un-assisted? When Meno has to go he has to go and I know his cycles so I change him in the early morning because he will not wait but thankfully he is or must be clean or he freaks out. After he is well awake he can do his business on his own but misses the bowel when he urinates so my husband showed him he can go just as easily sitting down. It was hilarious. We made it a family affair and I gave prizes to Meno and my husband. And my youngest potty trained 6 mos earlier than her siblings.
Hoping, cattails, RLP and the other poster-do you get counseling for yourselves? I do and I could not make it without it. Greenday777 I really synpathasize with you. Until I found this site I had no idea-no idea at all how traumatic all this is and where it can lead. I love my dad so much so I am making sure I know when it is time to let go, without guilt. When I frown more than I smile it is time to let go. I am not strong like the rest of you. Meno was given less than two years. I drew a hard line on that mark. I penciled in other marks such as hygiene. Abuse to me or my children. Non-compliance on a scale of 1 to 5. These were provided by his Psychologist and I will never forget that he said when we hold on to our problems find out why? Maybe it is because without them we have no purpose. Or maybe we will lose out financially. Or maybe we will feel guilty. None of those are valid reasons to live in a state of unhappiness.
The answer to your question is yes. You can get sick from caring for an elderly, sick parent. Depression can make a person physically ill and certainly stress can, too. I was an energetic, healthy person before taking leave from my job and moving in with my mother to take care of her. Now, I have blinding migraines nearly every week that last three days. I ache all over. I have insomnia and sinus infections constantly and UTIs. Stress works in insidious ways.
Take care of yourself. Even if you don't have health insurance, there are counselors that you can see for nothing at some clinics. I think talking to a counselor would help you relieve some of your tension. Also, try meditation. But, most of all, it's time to get your mother into a nursing home. You've done all you can for her.
it is hard for the only child with no other relatives who care or live nearby....
sostressed
You need to see your own doctor and explain your needs. Likely you need some meds yourself. Prilosec, taken with no breaks, can stop the stress from damaging your digestive system (my doctor has me on it daily.Asthma and Rhinitis and your sinus problems have nothing to do with your mom. These are related to allergies and internal respiratory problems and can be treated.
It seems to me that you need help and respite. You need to talk to your local Department of Human Services and your doctor about local resources that can help you get a babysitter for her or adult day care so you can rest and have some peace. You can also get free or reduced price counseling so do check into this with the social worker. Remember how she took care of you as a poopy, messy child and stay close to her. Maybe she felt the same way you do with 24/7 care of a young child. You are doing an excellent job! You just need some help and it is out there.
I am just recovering from an illness which started two years ago, (and has a 45% mortality rate) which coincided with increased needs and demands from mother. -even though I live 5 hrs drive way from her. I had to take a big step back. Respectfully I have to disagree with terrimerrits about certain diseases not being stress related. Asthma and allergies are, and are made worse by stress. They involve the immune system which is very affected by stress. Inflammation flares up with stress - this is mediated by the adrenal gland and stress hormones.
Please make some changes to help you. It sounds like you are going under. There is some excellent advice here. An unhealthy caregiver is not as good as a healthy caregiver. Your mum will get healthy caregivers in an NH.
Guilt causes do many of us to step into territory that we should not. Please let the guilt go. Your health is suffering seriously by the burden you have taken on. You love your mother, but that does not mean you have to be the one to change her diapers. I would think that her practice of "digging it out" and, no doubt, spreading it around, would be sufficient reason to move her out of your home, into a facility, if only for hygiene reasons, though there are more reasons than that.
Take care of you and let us know how you are doing. It sounds like you have a long road of recovery ahead for yourself
Joan ♥
YES!! being caregiver, especially alone, or even w/partner, is overwhelming, and can trash your health as well as your spouses!!!.
Just having an elder in the home and having to second guess whether they might leave a burner on, spill fluids, etc.,
or knowing you need to be there 24/7 to make sure things keep being OK,
combined with an elder who is mentally, emotionally, or behaviorally inappropriate, is terribly wearing.
I nearly lost my life. I had to choose, fast, if I wanted to keep living or not.
Was my life to be forfeit for my Mother's? NO!!!
Was my husband's life to be forfeit for my Mother's? NO!!!
Were our finances to be forfeit for Mom's? NO!!!
Were our connections with our kids to be forfeit for Mom? NO!!!
It is common to be conditioned/trained to do everything possible to help others.
That has been commonly expected.
But at some point, one must stop believing that lie.
IT is NOT appropriate: it is a form of martyrdom--a slow, deliberate suicide believing one is doing it as a sacrifice to something.
Sacrificing oneself for this, is wrong, and gives "sacrifice" a bad name.
The very old, ingrained notion of martyring self to take care of others no matter how they treat you...is so wrong!!!
Especially when one has committed to having a family.
GET YOUR MOM INTO A FACILITY IMMEDIATELY. And not just because of the poop issue. You need to put yourself back together again, and have a life.
Anyone who can give rational answers to questions
[like, "no I don't want to go to a nursing home"],
is likely sane enough to know to NOT play with her own poop.
Mental state:
That said, there might be other issues happening that need evaluated:
Poop-smearing can be a form of acting out to express [badly!], fears and anger at having lost control of her own life, lost autonomy.
Need to assess: is she senile/demented/or have Alzheimers?
Physical issues:
And your words about an ER Doc warning to get help for her more often--are her stools Constipated or Impacted?
IF so, she is trying to help herself get rid of the hard stool.
IF THAT is the case, giving her something to drink daily, such as juice or water with Chia seeds in it...[[you too!!!]] can help MANY problems...
I use: 2 tablespoons chia seeds in one cup of water or juice--juice is nice, since it gives good taste. STIR the chia seeds.
[[I mix 4 servings into a quart jar, and keep it in the refrigerator, once the seeds have developed their jelly coats, and use about 1/2 cup daily of that prepped mix; seeds can be put through a spice grinder too, to powder them before blenderizing them into juice--to give a smoother texture]].
A serving of that can be 1/2 to 1 cup in the morning; thickness can be adjusted by increasing or decreasing fluid--experiment to see how it works, and how it works best for you. I also often add Kombucha tea to it, to provide a good mix of Probiotics--that helps bowel issues very well, too..
WHAT it does:
Chia seeds provide loads of good nutrients,
but better,
provides good fiber [all the kinds we need].
It soothes and helps heal intestinal lining, so is good for IBS.
Because of the fiber and the fluid, it helps keep hydrated better, and helps keep the bowels moving softly--stool is soft enough to pass easily, but not watery.
This can help far more comfortably, and far more beneficially, than using stool softener drugs or laxatives.
Probiotics help fight off bad germs, help bowel health and balance, and help bowel movements.
OTHER POSSIBLE ISSUES:
In natural healing traditions, it has been observed that people who dig in their noses, or dig at their private parts, such as your Mom digging her poop out, MIGHT have parasites in the bowel.
This is often missed by mainstream Docs--in our modern world, it is assumed there are no [or very few] parasites. But that is incorrect.
Further, the usual methods of collecting a specimen for testing [merely taking a bit of stool], misses most parasites. To get a proper culture, one needs to swab the lining of the colon, and a dab of poop.
But, you really really really need to get Mom into a facility to do 24/7 care.
You have been doing it far longer than sanity or reason requires.
You have done an epic job of her care, and it is past time for you to take care of yourself.
You have been unable to get enough help for 10 years you have had her in your home: time to place her in a facility!
{{{hugs!}}}
Chi
There were way too few clues to deduce if this elder is psychotic.
Seriously deeper evaluation is needed to figure that--though that is another possibility.
Using anti-psychotic meds on frail elders might not be appropriate, DEPENDING on the circumstances.
Chi