Our daughter is getting married out of town (where she lives about 200 miles away). Her grandmother wants to go to the wedding of couse, and we would like her to be able to go to the wedding. She is 95 years old, has mobility issues and early stages of dementia. I (the mother of the bride) do not want to and pretty much won't be able to watch over her while all the usual wedding stuff is going on. She lives by herself with a caregiver that comes twice a day. She is homebound pretty much, uses a walker and has had incontinence issues. Has visitors occasionally. She's really determined to go. Have any of you been in a similar situation and hired someone to be an aide under similar circumstances? She has long term care insurance and we could maybe hire someone through the company that handles her daily care, or ask her daily caregiver if she could go on an out of town adventure. Her usual caregiver is wonderful, but is married and has a family. My husband and I want to have a day off from caregiving to enjoy our daughter's wedding, but have her sweet grandmother there to celebrate the best she can. And we don't want to ask any other friends or family to do it because that hasn't worked out in the past. We end up getting blow by blow descriptions of all the frustating things she does that people aren't used to. She would most likely have to spend at least one night maybe two. Any advice would be appreciated.
You do not say how much lead time you have until the wedding. If it is in the next few months, I think your only option is for her to watch a live broadcast from home.
If it is 5+ months away, you have time to do a dry run or two. The first would involve you taking her to the wedding location and spending two nights. If she can manage that, then a month or so later, repeat the trip but Mum travels with caregivers. Does she still manage?
One red flag is your comment "And we don't want to ask any other friends or family to do it because that hasn't worked out in the past. We end up getting blow by blow descriptions of all the frustrating things she does that people aren't used to." It could be that your friends and family are seeing the situation a bit more clearly than you are and perhaps her dementia is a bit more advanced than you realize. Or that she is less capable of handling change than you hope.
Lastly, you may well have to choose between enjoying your daughter's wedding or looking after her grandmother at the wedding, because if push comes to shove you will be the one dealing with any issues that come up.
When my ex remarried he had the wedding live online so his Dad who has Parkinson's, could watch it from the comfort of his home. And his mother (divorced years ago) could watch it from her home as she cannot sit comfortably for long periods.
when we came back we put together a photo album for her to enjoy o d other suggestion is to stream the wedding live so she can watch it from the comfort of her home.
Im dealing with dementia too and I find myself in awkward potions at times, many times where I have to say quietly, "He has dementia." And then you get the looks like you have just brought the biggest fruit loop basket case to the public because MANY do not understand that dementia can just be a bad case of the forgetfuls. I carry on like its normal and have even parked him at yard sales-he's not real mobile, and said to a stranger, "can you keep an eye on him a moment, I'll be right over there." And I carry on at times like this is the most normal thing in the world, leaving strangers with strained smiles and a bit of confusion on their faces. But I have learned to -just carry on-. Its not real different than saying, "can you make sure my dog tied to that pole for 2 min while I run in the store doesn't wander off." Now mine is not a wanderer. He is more than happy to be parked and play his one game on his smart phone or just nod off. And he knows when he's had an accident or needs to go and wears diapers too and he will let me know.
Then again, at 95, I shudder to think of all the colds and flus and people coughing and sneezing, it could be her doing in so to speak. People are thoughtless and careless at public events. It's ashame the family could not have planned for her sake to have it a bit closer to home.
Sounds like, much like me, you JUST WANT SOME FUN ME TIME without looking over your shoulder every 5 min. If you can afford it, since the other plans and location cannot seem to be changed, then hire an aid and take her. This could be, at this age, one of her last big outtings. But know that you run the risk of her picking up someone's cold or flu and that could be THE END at that age.
Still, if her dementia is mild and shes not ripping off her clothes in public or screaming to GO HOME or letting off strings of F you's at total strangers or anything that is really problematic, I say let her have fun if its what she REALLY wants. If she has said she wants to go and then has forgotten it, I say leave her at home. But if she is fixated on this, you think she is very aware of what is about to happen and you really think she KNOWS what she is wanting to do, and I do believe though someone has dementia, it doesn't mean that they do NOT know what they are asking or wanting...then go, hire someone, have fun, get some great pictures to remember this day. Because at that age, its more than a blessing to still have a mind and be alive. Let her live what she has of a life, as at that age, there is not much more left to it.
Marysd has great suggestions.
It can be done, and you are on the right track. Hire competent help and enlist a family member or friend to be available in your place if needed.
*Even if Gma is likely to go completely whackadoodle during the ceremony, which doesn't sound like the case.
Blessings to you and your family!
Arlene Hutcheon
I wish you luck, this is a really difficult decision I know.
She talked about it for weeks before,but sadly didn’t enjoy herself... the music was too loud didn’t understand what was going on. If I had to do it all over again, I would leave her home:(
We are having a bridal shower this weekend here where we live, and we will see how it goes with that. Sort of a rehearsal for the wedding.
I think she only realizes bit by bit that attending a wedding, going shopping for clothes, etc without planning or depending on others is not in the cards any longer. It's hard for us to realize sometimes too. My husband is not sure this will work out and we may get down to the wire and have to put a stop to the plans and do something else. We'll just have to take it a day at a time. Again, many thanks for your suggestions.
I would say... FACETIME IT! With all the video stuff thats out there... encourage a grandchild to get their computer hooked up... with available hotspots and gma can be right up there in the action when and what she can handle.
Or... have a redo... have a simple redo ceremony and party it doesn't have to be big just enough so gma can be part of an outing. Decorate have cake, always a reason for cake, and gma is part of the little ceremony.
Blessings
Hgn
We(mil) rented a car for the caregiver to drive. We arrived on Thursday, and they drove down on Friday. They stayed at the bride and groom's home because we felt they would be more comfortable and our daughter and fiance' were staying closer to the venue and were gone anyway. MIL was too tired for the rehearsal dinner, but came to where we were staying the day of wedding and got dressed and made up. She got to spend time in the bridal suite with the girls. We arranged for her to be seated first and she walked down the aisle with our older daughter's husband without her walker. After the wedding she was included in the pictures, she had dinner, then we went into the dancing area where we put a chair for her to sit and watch. She stood up and danced in place with me! (mainly just waving her arms around lol) She was so glad she came. Everyone thought she was great. Sunday she slept til the afternoon and they drove home . So it was a great success. I never had to worry about anything except having a good time and enjoying the moment. She had a good day mentally and physically (she wore her special undies). She is fortunate to have the means to pay for all this and is back at home in her regular routine. And we are giving the caregiver a nice gift card. She was the key to this whole thing. Thank you all for your advice and input.
Let it be clearly understood that you are needed to be there for daughter, Grandma wants to see the wedding.. can you fit a few more people into the wedding/reception area? Make it sound like fun, maybe caretaker will agree to it.
This is just one idea. a caretaker I knew drove his person to an event. They rented a van that was wheel chair accessible. They spent the night, went to event, and drove home the following day. Edith loved it. She was a wonderful lady, and so was her caretaker, but he was a guy :)
Got keep my eyes opened for those lil things. :)