His brain is now damaged and can't go to SSA. Before my father became ill, he took care of everything he thought we would need, including naming my mother & me as POAs.
When my father started getting sick, my parents moved to a senior facility. We input change of address forms with the Post Office. They do not provide cards any longer for notifying people so one has to rely on the PO to take care of changes. They only do it for 6 months & then stop. Because my father got really bad within 6 months of moving, he was not mentally able to help us do much, and as things have progressed it has become worse. He is now completely bed bound. The best answers one can get from him are yes and no, but one never knows if that is what he really means. Because his legs have now pulled up in a permanent fetal position (can't even be pulled down), we cannot even get him to a car. If he has to go somewhere, it has to be by ambulance.
This year we did not get tax forms from SSA. So we got a caregiver for Daddy and I loaded Mama and all the legal papers up and we drove to the other side of the county to go to SSA. They refused to give us the tax information or change his address because they "don't recognize powers of attorney". They wanted me to bring Daddy in for him to give them permission to let me do the business. I explained why that was impossible. It did not matter. Does anyone know if this is true? Why would an agency that deals with the aged and/or ill people not recognize a POA? People are encouraged to get things ready for the possibility they may not always be able to handle their own affairs & the main agency for dealing with them refuses to honor the written, notorized wishes of the disabled? It just does not make sense. What really is crazy is the military has helped us get things changed, IRS has changed things for us. All of these Federal agencies recognize the POA. Why not SSA?
Has anyone else run into this issue?
Take care,
Carol
SSA told me I have to get a letter from his hospice doctor saying he is unable to do anything. That is in one town. Then I have to take the POA to the county courthouse with the letter & get it certified. It is in a different town. When all of that is done, I take it all back to SSA, in yet a 3rd town, & then they will appoint me as financial guardian. Full time caregivers have lots of time and energy to jump through hoops. It also means one has to hire someone to sit with the home bound while running around. Since I am the only caregiver locally, it is just ridiculous.
Because of this experience, I am taking my mother & husband, who are also disabled, to SSA the next time I go so they can appoint me their financial guardian before hand.
I think it is time for Congress to act. It is ridiculous to cause people these type of problems.
An elder care lawyer should be employed and consulted frequently on all these issues.
http://www.ssa.gov/payee/LessonPlan-2005-2.htm#WHATISPAYEE
(YEA SURE ...minor!!!) detail I needed to get my Mothers Medicaid application approved!!! The entire application was a breeze compared to this. It was proof of her Life Insurance Policy not being a cash withdrawal before death policy, I needed to prove that it only matured upon her death. Sounds simple right???? A piece of paper stating a fact! How could this be a problem, they had my POA papers, they had told me this was the type of policy over the phone, they said it does not say that this action was ranted on the POA papers. So I called and called and called and called about 100 x's) ... well lets say I wasn't going to stop, until I got a yes!!!! I explained the details of my situation every time, I told each person I spoke to on the phone to make a note of why and what I needed every time I called. Then I finally got a smart girl on the phone that noticed my persistence and the urgency of my Mom's life on hold for just a written letter with the fact stated. She said "well OK that's all you need?"... she understood !!!! I wasn't asking for money just a letter for Medicaid!!!! She commented on my persistence and apologized for all the hassle!!! I had the letter two days later!!!
Mom was kind of "stuck" in a locked in unit for seniors, not a pretty scene!!!
I needed her finances in order to move on with her care plan.
I also had a hard time with a certain billing department at that Hospital, no one would answer my questions, only the head of that dept. knew the answers and he was always too busy and he'd call back when I wasn't home and leave messages. They wanted payment but I needed to explain, my Mom's finances were being held up due to the improper wording on the POA. So I went personally to the office, by this time the two girls in the billing dept knew me WELL, we were on first name basis they recognized my voice by this time, they knew exactly what I needed to do, as they both heard my story over weeks of phone tag, but this was not their job. So I said "is he in?" they said" yes, but he's in a meeting" " I said I'm off ALL DAY GOT NOTHING BUT TIME (big fibber I was) .... I'll wait until he's got time to talk to me.... I just want to pay but can't at the moment." I guess billing dept.'s are not used to honest people hunting them down.... Well I sat there for not too long... I had my meeting and got more than I expected (he showed me in a 10 minute tour... what I needed which door to go to who to speak to etc.) all of what I needed to do to clear up the billing issue and get her released to a NH. I had many applications to fill out by different departments, because as it turned out Mom was so broke (explained in the application process, paper trail I had to give) that I paid the minimum she required for her income level etc.
One lady I spoke to after all was done, I had called to make sure no strings were left untied actually chuckled and said you're a commendable person, most people would have given up long ago!!!!
See I think you need to not waist time people (employees) that you know are no help to you (there's a lot of them out their), you need to state what your need or actions or reasons are clearly, to those who can help or those who are willing to do "their job" , know the right questions to ask and to whom.
If you hit a dead end take a road that gets you there!!!!
I talked to the hospice people today & they are supposed to be getting the letter from the doctor I need.
Today I remembered what used to happen everytime we got a Congressional Inquiry when I worked for IRS. Management literally jumped thru hoops to get issues resolved. I have decided that is what I am going to have to do. SSA should not be making life more difficult for people who have given up their own lives to care for others. Even if I can't resolve this issue for myself I am going to do what I can to make things easier for those who follow me. Maybe I won't get anything changed, but maybe I will. I'll never know unless I try. I propose we all write our Congressional representatives and flood them with information on what it is like trying to cut thru the red tape with SSA.
I won't have to deal with Medicaid or any lookback periods. But, I have been extremely worried about the uninvolved brother coming in after Daddy & Mama have died and wanting to know how every penny has been spent. I was also worried about keeping all of the receipts, bank statements, etc so I could prove things. Eventually these things add up and fill up space. My sister had a talk with my mother about the record and receipt keeping. We are working on drawing up a codicil to the will saying that anyone, other than my sister, that questions where the money has gone or questions their fair share of the estate loses their right to inherit anything. A separate agreement is being drawn up that says I am only answerable to my mother and sister and they have 2 months from the end of a month to question any amounts expended for my parents. It will set up a schedule of the date receipts will be destroyed (except of course what has to be kept for IRS and the like). Once past that date, they are beyond audit. I have been spending almost as much time taking care of their business as I have been taking care of them. My own life, like most of yours, has been neglected taking care of theirs. Next on the agenda is to try to simplify their financial affairs. They do not need 3 checking accounts and savings at 5 financial institutions. Maybe more than 1 savings account is needed, but not 3 checking accounts.
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