My mother is one of the most miserable humans on Earth, and has been for years. Whenever anyone has asked her "How are you doing?", for as far back in my memory as I can reach, I can never remember her saying "I'm fine". Now she's smoked herself to death. She has COPD, CHF, steroid-induced diabetes, a colostomy, osteoporosis, bone spurs in her neck, neuropathy in her limbs, brittle skin that tears at the drop of a hat...the list seems endless. She refuses to get out of bed to try to exercise to keep up any strength, and wants me to do more and more and more for her.
She's in the hospital right now because of a fall last week. She says her knees gave out.
I don't think it's so horrible that I just want this woman to finally have some peace, and yes, honestly, for the rest of us around her to have some as well. The discord and disharmony this narcissist spreads with her always ALWAYS negative attitude takes a toll. She will never change, and her health will only continue to go downhill.
I realize that I don't get to make the decision of when she goes, but I will admit that I do want her to. I think it's the only way she'll finally be "fine".
if you know your LO is not happy within the body, and you feel the screaming from within...
they don't want to do this anymore..
thought mine was sleeping. Best friend asked how long was he in a coma for...?
What? Coma? I was in denial... he didn't want to do this anymore.:
Hospice can be wonderful...
I was unable to keep working, missed many hours of work until they let me go because of surgeries (broken leg, triple bypass, colon cancer removal, colonoscopies, hospitalizations, and medical appointments. We fight over him not wanting to take his prescribed meds. He struggles to sign his name, cannot comprehend bills, time of day, temperatures, weather, or dates. He can dress himself and changes outfits up to 6 times daily, including shoes. He insists on wearing an undershirt, tshirt, polo, long-sleeve shirt, and heavy jacket when he goes out and attempts to mow the lawn, arguing with me if I try to get him to wear less. He can no longer follow the plot in movies or conversations. He has a 30% hearing loss. He struggles to use his cell phone, can no longer do puzzles, struggles to read, and is starting to have difficulty getting his shoes laced correctly and put on. He does not want shoes with velcro.
He confabulates big time! Anything he sees on TV becomes part of his reality, including his past. Anytime we meet people, he has worked where they work and been where they have been. When he sees a picture, he has been there. He is currently building a trans-continental railroad not only across the US from Florida to California, but also clear to England. He wants to be helpful, but cannot follow any sort of direction, even if it is just pointing a finger. He goes through the trash and spreads out any discarded mail all over the house. If I don't stay on top of the dishes, I will often find dirty and greasy dishes put back in the cupboards.
I am on disability due to an unrepaired Achille's tendon (now missing) and require a rollator to walk. I am overwhelmed and resentful since he was diagnosed just 15 months after we got married. Fortunately he does not wander, but is fixated on having a dog. I am allergic to the dander in addition to the fur for both dogs and cats. I do not need any additional responsibilities. He isn't watering the tomato plants he bought. He is resentful that he no longer has car keys (we sold the 2nd vehicle), and thinks that if we just buy another car he can drive again. He shouldn't have passed his driver's license renewal last time, but the gal coached him (too much) through the street signs and their meanings.
We have no family nearby, so it is basically on me. I have given my own children instructions that when I meet certain criteria they are to take me to Oregon where assisted suicide is legal, and terminate me. I refuse to put anyone else in the situation in which I find myself.
I understand the desire for it to all be finished.
Could someone please tell her that it's not wrong to hope someone dies????
My spouse has FTD and I am his fulltime caregiver. I'm exhausted and I feel like a prisoner in a mental institution. Do I want this suffering to end? Yes, yes I do.
You've done well keeping your father home for as long as you have, but it might be time to place your father either in AL or a nursing home. It's not a perfect solution by any means, you will just be trading in one set of problems for another. But it would easier on you and your siblings.
I learned during my slog that the focus in caregiving should not be solely on the person needing the care but also has to factor in the needs of the family members giving it and when it is time to seek other options.
I wish you peace as you navigate this. It's hard.
Prayers for him are welcome.
I don’t have an ounce of feeling left about this. The man is bed bound, sleeps most of the time I’m visiting, stares off into space when he is awake and does not care about anything. He’s dead now as far as I’m concerned.
I just wish this would finally end so I can move on. Can’t stand it anymore.
the family said she was aways kicking off - them waiting for ww3 to arrive. She caught brain tumour that couldn’t be operated on and that increased her poor behaviour to her family
she was given a couple months to live and by the end of those couple months the family were relieved for her to go
It’s understandable when anyone’s. Coping with poor behaviour
That said - wouldn’t it be nice if your mother could go into some form of care and release you to only visit her - the dynamics of the relationship could get positive ?
don’t feel bad about thinking tvat- you are and have been coping fur a while but feel the emotion and then let it go - the more power u attach to it the worse the symptoms ( stress-anger etc) will be
speak to her dr - speak to charities find out your options
and stop agreeing everything asked of you
You are so out of touch. Medicare does not pay for in-home care. Medicaid provides some but on a limited basis. Lots of luck getting anyone decent who works for a Medicaid agency. That was my experience.
After many years of putting someone else first, there are a lot of us who wish that part of our lives to finally resolve. Refrain from judging others. There is nothing wrong with feeling this way.
It is hard to see a man, so intelligent and capable, having had a long career managing complex and expensive projects, decline to the point that he cannot navigate an iPhone or tv remote.
He knows enough to know that he doesn’t want to live like this. He’s in the mid-stages of the disease. But short term memory and executive function continue to decline. He has always been a negative “glass half empty “ kind of person. Nothing I can do improves his life or makes him happy. It’s been like that our entire marriage. He is miserable. I won’t allow myself to be miserable. But yes, a peaceful passing into the afterlife would be a blessing, for him and for me and his daughters.
Just when I thought things were finally behind us after 6 years, he develops PD and dementia. I saw the memory issues first, then the shuffling gait, loss of balance and blank stares started. Now I am noticing tremors. He also has very odd behavior such as picking up every small crumb off the floor or the counter or picking up small insignificant objects off the ground when outside. He is oblivious to this odd obsessive behavior! He wears dirty clothes and just doesn't care about his appearance anymore. He is a shrunken old man. Falls asleep off and on all day long. He is not the same person. Cannot use his phone, remote, microwave. Cannot take care of finances or drive. I feel like I am in a constant nightmare! I feel so resentful and the anger from all his past betrayal is surfacing. I cannot sleep well and have chronic anxiety. We moved 2000 miles away from home to live near our daughter and grandkids, so I have no friends or support. My daughter is nearby but is busy with 3 small children. I cannot even tolerate being around my husband but must keep up the house, cook, clean, pay bills, schedule repairs, drive him everywhere. I feel like I am being punished. I find myself wishing I would have filed for divorce 8 years ago. Now I am stuck. I pray every day for God to give me strength just to make it another day. My husband is oblivious as to his condition and how it is affecting me. He shuffles bent over on the verge of falling, misplaces objects that I use from the kitchen, breaks dishes frequently. A living nightmare!! If we had money I would place him in AL but we are in that area of not rich but not poor enough for medicaid. He also kept financial secrets from me in the past and pilfered all our retirement money day trading stocks. So we are mainly living off both our social security. He also has a medicare advantage health plan which is crap. Sorry to be so negative but it feels good to vent.
It's normal. It doesn't mean you're going to murder them.
However we are only human.
Thanks a Lot for this question.
You can always leave the murdering to someone else because I can assure you madly lots of people are quite interested in for their own claims and reasons to make that person suffer.
I did the best I could to try to help him through his end of life stage but as terrible as this sounds, I am unable to devote any more time to him. I had hoped he would have been already gone by now. My life has changed so much in just a few months since my husband's stroke and heart problems and my daughter now needing help because her husband left.
I have learned just how miserable life can be.
Prioritize your life, most especially bonding with your new grandchild.
Not one of us wishes he had been around to suffer more.
Fil enjoys the hospital. It’s more family devotion time just for him. He has told his son, too, that it’s actually nice to have mil, sil and the aide wait on him 24/7 as if he is king of the roost. He ripped up his dnr. He wants to go to the hospital and live forever.
I was notified that he had developed a bed sore and that it was being treated. As horrible as it sounds I thought to myself why. All this treating these types of things just prolongs his inevitable death. Of course he is being treated but it just makes you wonder if this actually is the right thing to be doing.
Its such a shame. I can see why you feel this way but, you still stepped up to the plate. Your a good person.