My dad passed away almost 4 years ago. My Mom moved into an independent living community almost 2 1/2 years ago. Unfortunately Covid was happening and a lot of activities were suspended. When things started to open up and my Mom went to play cards, bingo and other activities. She took her dog for walks and seemed to be fitting in. About 8-10 months ago she stopped socializing. She said she didn’t like the people and stopped taking her dog for a walk. Now she realize on me for socializing and her dog uses her carpet for a toilet. I visit once a week for a few hours and most of that time is spent taking the dog got a nice long walk b/c that’s the only real time she gets outside and cleaning her apartment. It is utterly depressing and I dread going. Lately I’ve been voicing my frustration at the situation. She uses a walker but is capable of walking her small dog. When I visit around mid-morning she is still sleeping and answers the door in her night clothes without even greeting me. I’ve explained if I did that to her she wouldn’t appreciate it or feel welcomed. This situation is wearing on me. I’ve tried for months to change her habits but nothing is working. I’m becoming mean and resentful towards her and I don’t want you be that way. I love my Mom and want her to live her best life. I think she feels like one of her children should take her in like my Aunt did with my grandmother. And I tried having her visit on weekends. I rearranged my first floor to accommodate her. Since she can’t do stairs that won’t work full time since she wouldn’t have access to a full bathroom. And retrofitting my house isn’t an option. I need some ideas to get her to get up and get out instead of lying in bed and doing nothing all day. She’s completely capable she just is depressed I guess.
You cannot change her.
I wouldn't call her behavior habits.
It sounds like you do not understand what is going on with her, psychologically and/or cognitively. And you are at your wits end 'trying' to figure it out, while exhausting yourself and feeling angry.
* Realize that you need to set limits although to do that, you must recognize what you have been doing - adjusting to her desires, ignoring your own life / needs. You need to realize there is a 'you' inside you that needs a life, 'TOO' - Hence, boundary setting.
* There are reasons why your mom changed. And it is likely a multitude of reasons:
- Covid changed a lot of people. The isolation was psychologically difficult / requiring the adjustment of being alone.
- That she no longer takes care of her dog (no walks) and other things you say tells me that she is depressed.
I am curious that you didn't mention any medical assessments.
Did / has she gone to an MD?
Do you go with her?
Did you think that she needs to see an MD / medical provider?
She needs a medical assessment.
Realize that - as you say: "I become mean and resentful" - (I presume that) you are doing this because you feel you 'have to xxx" and then you feel stuck. You are not listening nor even asking or realizing that is a 'you' inside you that has needs and feelings too (as I said above). You have / are giving all your power away to your mom.
Of course, this is hard for you. You do not want to see her suffer.
However, when you allow her to rely on you (taking the place of relationships she had or could re-/develop now with seniors her own age, you are short changing her - and yourself.
- Instead of being there - the 'replacement' of the community,' encourage her to go to events and mingle, even if you need to go with her a couple of times. Introduce her to people and then leave for a while, saying you'll come back later.
I wonder if her brain is changing to the degree that she is scared and cannot hold a conversation with others nor remember. Although MANY people with dementia hold 'amazing' conversations - as they often forget and/or are on different cognitive realms / tracks and it doesn't matter. And, there are parts of them / their brains that still work and enjoy the company of friends - making new friends.
If I were you, I would first get her medically assessed.
She may need medication for depression.
She may not be able to care for her dog any longer. You will need to be strong and re-act confidently in your decision when you tell her that if she doesn't / cannot walk her dog ... take him / her out regularly (2 or 3 x a day), that she will need to surrender the dog.
Mother daughter relationships are not (necessarily / always) easy.
Mine sure wasn't.
Give her the opportunity to develop friendships where she is.
Do not continue to take that away from her.
* Talk to the social worker. They will help you work through this.
* Perhaps some residents could call her to say hello.
* Other residents might be able to escort her to events.
She will continue to depend / lean on you as long as you allow this. When you stop, she has to change 'somehow.'
Learn to understand what is running you.
Learn to / how to set boundaries with your mom (and understand how this feels to you when you do).
Decide: How much time you spend with her.
She will not like you setting boundaries / limits as this is new and affects her. You have become her security blanket and you are now taking that away. She is scared (and depressed).
Really listen to her; ask open ended questions.
How does she feel about her dog?
Who / what people doesn't she like? It cannot be everyone.
Why doesn't she go to activities ? try new ones?
How does she feel about herself. Have you asked her?
Lastly, NEVER ARGUE. This is a no win strategy. Do reflective listening.
"I hear you saying xxx".
Gena / Touch Matters
To reduce anxiety, I would not go into this with high expectations for improvement. I would think managing her care and putting care givers in charge for part of time if possible until improvement is seen. It will be a continual transition to more advanced care eventually. You could get a camera installed so that you could monitor her on your phone, get her a medical alert system, and maybe others (friends, community, church) to check on she and her dog regularly. I'm sorry for your distress, but most of us understand the process, and it is not easy and often very time consuming. Pray on it and make time for your own care and interests. All the best!
I'm sorry you are dealing with this - it's so difficult and I also had her asking to come live with me. I have lots of stairs in my house and I'm not home most of the day so it was actually more dangerous for her to stay with me. She also gets up 2-3 times in the night to use the toilet which I just wouldn't have coped with. She didn't listen to the carers at frail care when they asked her to please press the buzzer when she needed to get out of bed to go to the toilet and subsequently fell and broke the other hip. She now has a 24-hour carer in frail care to make sure doesn't hurt herself again.
Then you can go from there. Have PCP assign a Geriatric Case mgr or Licensed SW to her; this person can both help her and you going forward in many ways toward accurate discernment of needs, coping skills for you both and many other things.
Make an appointment for you and mom with a Geriatric Psychiatrist (who can medicate depression).
Sounds like it's time to move Mom to Assisted Living and rehoming the dog to a family who will retrain the dog to relieve himself/herself outside. DO NOT volunteer to be a caretaker, it will ruin your relationship and your life (as you wish it could be). Be sure to find Assisted Living with an Activities Director.
Now, she’ll complain that she’s lonely and nobody visits, but maybe 1 out of 4 or 5 times tell us to leave the moment we arrive, because she doesn’t feel like having visitors. You may not be able to fix your mother’s social life.
First I lucked out and found a great geriatrician who started working on her physical issues such as better control of diabetes. At my request she also tested her for depression and cognitive issues and found she was dealing with both. She then started my mother on antidepressants. She has been following my mothers health closely, in fact I have to go shortly to take her to an appointment.
I was lucky again when a friend of mine, who is an RN and had lost both of her parents a short while before, offered to spend a few days with my mother to catch up on cleaning and other projects and to let me know how she was really doing. My mother doesn’t like one of my dogs for the way he barks so I don’t spend nights with her and she lives two hours away. I think the fact that it was a friend of mine who had visited her on occasion helped a lot since she had been adamant that she did not need help. We then hired my friend to spend a few days each week with her.
When it became apparent that she needed to be checked daily to make sure she was taking her meds we hired another, local, RN to help her on the other days. She really objected and still says she doesn’t like her but they seem to get along when together. My mother has always had trust issues. The new woman started to take her to the movies at the senior complex’s main building (my mother has a cottage) and also looked for other things to do with her. Both of them walk her dog and are encouraging her to join them on the walks when the weather is nice. My mother now asks them what the plans are for the day when they come and even ate at the dining hall after a movie and got to talking with some other residents! It has taken two years to get to this point and a wonderful team. The doctor recently said that she was really at the stage for assisted living but that she seemed to be good for now. We do have to keep reminding her that without both caregivers she would have to be in assisted living and that helps her accept the help.
In summary I think that finding a good doctor to control all medical issues as well as test and treat her depression, finding daily help for her who are also willing to walk her dog, a lot of hard work, and, in my case, a lot of luck in finding good people has made a huge difference. Nothing will stop the cognitive decline but she is doing things and enjoying life again. One last note, she does try to discontinue the antidepressant occasionally since she says she isn’t depressed now so we keep having to remind her that she isn’t depressed because she is taking the meds! I am on them myself and I know how hard and fast the depression can return if you stop.
Good luck!
In the meantime can you find someone to foster her pup? Its neglect to have him live that way.
You need to realize her social life is not your responsibility.
Not wanting to socialize with others there is not my concern but no longer walking the dog is a big red flag. Hire a dog walker at the least.
She is no long Independent. She needs assisted living.
Do not even consider having her move in, it will not end well.
Because much of this depends upon THAT.
I, for instance, need very little to keep me content.
You describe your Mom, however, as depressed.
So she may need more outlets or she may need to try some medication or see a doctor about this. But without discussing all this with her, how would you know where to start?
I too have experienced behavior from my mom that felt like extreme discourtesy: for example, single-word imperatives--"blanket"--instead of polite sentences--"could you hand me my blanket?"
Also, I set up some smart lights and she seemed sort of annoyed about having to say "hallway light" instead of just "light." This too I processed as rudeness/ingratitude.
But recently, after a very bad 72 hours, when I was deeply exhausted, I realized that speaking even one extra word (and just speaking at all) actually takes an enormous amount of energy.
I'm better rested now but trying to hold onto that memory since at the time I felt like it gave me important insight into how my mother speaks / doesn't speak.
Not sure if that helps at all or is relevant to your situation, but I'll post this just in case.
Yes get her to her doctor but in the meantime speak with her facility for help. At my IL in a situation like this they would contact my POA immediately.
After she's evaluated, you may have to make choices. One of them should not be inviting her to come live with you. Many have thought that was what would help an elderly parent, and many have found themselves miserable, their families torn apart, their finances wrecked, and the parent in even worse shape. Don't do that.
If her community has continuing care, check out the memory care unit. She may need to be there.
Good luck with all of this.
Other than her being depressed it also sounds like there is some type of dementia going on, so definitely get her to her doctor sooner than later to find out exactly what she and you are dealing with.
Are you your Mom's PoA? If not, is anyone her PoA? This will be important for her to have and she still may have "capacity" to create one with an attorney. Managing care and making decisions for someone who is incapacitated and uncooperative will be exhausting, so I encourage you to help her do this, if she doesn't have a PoA yet.
If you are her PoA then get out the document and read it carefully to see what is required to activate the authority and to know what authorities you actually have for her.
While waiting to get her into the doctor, you will need to check if she's on any medication because she could be under- or over-dosing on that which maybe could explain her change in personality. Also, her doctor will need to know if she's taking OTC sleeping pills, etc.
If she allows, help her get her banking and bills straightened out so that you can have some insight into her financial condition.
If she is resistant to go to the doctor, you can use a "therapeutic fib" to incentivize her: "The IL now requires an annual physical", "You have to have your annual Medicare free physical before the end of the year" etc. It is perfectly moral and ethical to do this -- I did it for my MIL and so glad I did.
If her community has a AL I would start checking it out. It will feel hard and overwhelming at first but it will be very important for her to have an accurate diagnosis. I wish you success in getting her in to the doctor and figuring out how to best help her.
If not it is time to schedule one.
Send a note to the doctor (use the portal to communicate so you do not have to discuss your concerns in front of mom)
this could be :
Depression
Cognitive decline. And this could be from any number of causes.
Underlying illness.
If she can not manage the dog then hiring someone to come in a few times a day to walk the dog would be the kindest thing to do for the dog. maybe the person walking the dog can get mom out as well. I have long thought that there is a risk of falls when a person with a walker, cane or other mobility problems has to walk a dog.
Hold off your assumption that "she's completely capable" until after she sees a doctor.
Does she have a diagnosis of cognitive impairment? Depression? Dementia?
I would start by getting her to her PCP for a checkup and discuss possible referrals to neuropsych and psychiatry.