My wife has ( Sundown Syndrome) she wears depends, when I go to change her she gets upset thinking i'm out to hurt her gets very angry. I don't want to see her in soiled clothes but what am I suppose to do?.
We have been married for 32 years and would never hurt her. We both live at home.Looking for assistance
I think perhaps not.
And she is seeing your attempts to help her as a sort of "molestation" and is therefore fighting you. You may be close to the time when you can no longer care for your wife at home. She may need placement among "strangers" she trusts to care for her.
Isn't that just the saddest thing?
Dementia is full of sadness. We lose our loved ones. They lose us. Of course you would never hurt her, but her broken brain can no longer understand that.
My sympathy goes out to you. So loyal and so loving. It's time now to watch all you can about the brain that is broken. Oliver Sacks, the late neuro-scientist and physician, was absolutely captured in his adult life by the study of the brain. And his study of those with dementia convinced him that their world was as real as ours, but that the gap between our worlds was so huge we could not bridge it.
Watch and read all you can about our brains, and particularly read Oliver Sacks and watch Teepa Snow.
My heart out to you as you negotiate with so much love this last devotion. I am so sorry for all you go through. And I think we can never understand the courage, the difference made, from our limited understanding of our own "real" worlds. I wish you so much peace. No one can understand your journey but those who have taken it.
And if in home help isn't an option, then perhaps it's time to look into placing her in a memory care facility, where she will receive the 24/7 care she requires and you can get back to just being her loving husband and advocate.
Call in homecare. An agency can help with an assessment to see where she is in her dementia. If she's at the point where she doesn't recognize you and is freaking out all the time, she should be in memory care now.
I was a caregiver for 25 years and now operate a homecare agency.
If her dementia is so advanced that she doesn't recognize you anymore, is in diapers, and there's a struggle to get her changed - it's probably time for memory care.
You could try hiring someone from an agency but this won’t give you 24/7 care for her. At some point you will still be in the same position of having to change her. I would start looking at facilities for her.
Once she is placed, then you can support her by being a husband and advocate.
It’s nice to read something positive here
Best of luck to you all.