I'm a 53-year-old single mom of a teenager (16), working full-time and caring for Dad (90) and Mom (80) who were VERY special to our small town community: him a former well-beloved mayor, her a former well-beloved teacher. Mom suffers from vascular dementia and a broken hip which is not getting better so for the last 5 months she's been spending her days in bed. Dad is a local hero (mayor for 40+ yrs), thinking he still can do it all (caring for Mom and the community) though he absolutely cannot (just last weekend ended up in ICU again), suffering from painful spinal canal stenosis and therefore frail as well. I've been there for them for the last 3 years while working full-time and caring for my teenage son. Only brother living 1.5 hours away, hardly shows up but helping in doing the paper work.
Having been there for their psychological needs including the tensions of their marriage from an early age I now feel overwhelmed by their huge egos which they despairingly try to maintain through their own decline. It is all about them all day long, they do not see me nor my own struggle, so that by now I feel sucked dry, depleted and terribly isolated. She is chronically jealous for good reasons while he admittedly never really loved her but kept up with the marriage for the show. All the mess coming up now again in their old age, me once more being used as the go-between on top of my care duties, while they still look golden to everyone else in this town. If I abandoned them I'd have to move away since nobody could understand.
I urgently need to detach myself. Moving away unfortunately is not an option because of my son. Feeling like an effing marriage counceller who is permanently manipulated and subtly abused. This needs to stop. Any advice appreciated!
Do either of them have an actual diagnosis of cognitive/memory impairment in their medical records?
Are they living in their own home? Or with you?
Please understand that dementia makes a person less able to empathize with others. I'm sorry about their marital drama but their marriage and it's problems are still in their long-term memory so they couldn't move forward towards forgiveness even if they wanted. Their reason and logic skills are also evaporating.
I realize it is easier to say it than to live it, but you must ignore what others think about you and the quality of care you provide. If you continue to care about their gossip it will cause you to make poor decisions.
Also, I think by this point most people don't believe everyone is totally "golden"... If they believe that, they are just naive -- or don't really know anyone very well at all. I wish you courage, clarity, wisdom and peace in your heart as you make the wellbeing of your child and yourself a priority in all of this. You've been doing yeoman's work so please feel good about that.
Thank you for your swift answer, it helps me a lot. To answer your questions:
- My mother has been diagnosed 3 years ago with vascular dementia when my father fell, broke his shoulder and was hospitalized for some weeks. He had covered up her dementia before which then became obvious. I was the only one around to step in and have been involved ever since.
- Since he is frail but clear-minded he still has DPoA over her, so all major decisions go by him.
- Both live in their home, 2 miles away from me. So I am the one available whenever they need me and I see them on an almost daily basis. I also deal with their doctors, secondary caregivers plus all extended family (brother, aunt etc.).
Their marriage has been hell since I remember (behind closed doors of course). Her suffering from dementia is not making it easier since she keeps reproaching him stories with other women from decades ago. I might add that he - though still clear-minded - responds to her reproaches in a very insensitive way which upsets her even more.
Both of them has always been taken me and my empathy for granted. Considering practical questions of their care they are very stubborn and want to keep things as they are with no stranger to "meddle" in their affairs. They hardly accept any "stranger" to get an insight in their intimate affairs. But I informed them that I could not hold up the frequency of seeing them anymore since it seriously affects my and my son's life.
Thank you again for your encouragement to ignore the small town gossip. It is just tough to be asked on every grocery shopping about the well-being of my parents when nobody gives a toss about the well-being of my son or me.
Their reputation is a lie and you should discard it like the rag that it is. I grew up in a small town, so I know whereof you speak.
Focus on what your parents need, not what the crowd thinks you should do.
In your shoes, I think I woukd step back and maintain a fiction that "they are fine". If someone thinks they are not, please invite them to call Adult Protective Services.
Two can play at the "fiction" game you know, and as an adult child, you have NO legal obligation to provide hands on care or counseling for your dysfunctional parents.
I made the decision to drastically cut down my visits yesterday, after our family doctor told me that each time she visits them my parents go on and on how helpful my brother (!) is. He is caring for their insurance and looks after their finances, but has been visiting them only every 2 months for 3 hours. He is living 90 miles away.
I was devastated when I realized how little they appreciate that I've been there for them constantly for the last 3 years, and I thought "Well, if my caregiving means so little to them they obviously should easily be able to go without it."
Letting them play their "fiction game" alone seems an appropriate response.
Thank you, Daughterof1930, for your helpful input. Though slightly different you situation seems very relatable.
I still justify myself all day long (mainly inside my own head) and permanently seek the final "permission" to drop the rope. Not so easy to change a conditioning of 50+ years. I wish it would not mean so much to me that our doctor validated my perception. If one has been gaslighted for decades it is ashamingly difficult to find one's own compass again.
BUT if there's one thing making all that nightmare worth it is that I am finally forced to let go of the rose-colored glasses concerning my upbringing by my oh-so-"golden" parents. It was long overdue.
For whose benefit are you helping to maintain this facade?
If you really can't hire services to meet their needs, then wear ear plugs - literally or metaphorically, whichever you find easier. Saying unsmilingly "I am not going to listen to this" has stopped people I haven't wanted to hear, I know; have you ever had a chance to try it on either of them?
thanks for Mae West - you made me laugh! As for diaries I've been writing them for 4 decades now, and there are quite some hints to find about the true nature of my parents. But from 20 to 40 I lived quite far away from them, even abroad, so distance made the heart grow fonder I guess. Wishful thinking! And I genuinely felt (and even still feel) compassion for them getting frail and having to let go of their successes, merits and autonomy. It is a painful process for anyone to get old. But I realize that it is and mostly has been a one way road, since compassion for me and my son is hardly existant.
My parents have professional help 3-4 times a day, so I am gladly not involved in their body hygiene / medication etc., but for errands and all their social and pschycological needs. So cutting down my visits is not going to kill them physically. They will just be very lonely.
My mother started her smear campaign against me when I was a little kid. Above all things my mother wants sympathy from others. I was her abuse target and she would instigate, gaslight, and covertly abuse until she got the outcome she desired which was a hysterical, spoiled, brat child throwing a violent, vicious tantrum. Then she could play the poor, loving mother who did nothing wrong and who suffers day and night. Everyone would feel sorry for her and she'd get the sympathy from others that she craved. Of course it would be all my fault because I was "that kid" who others are encouraged to hate. That kid is always the family scapegoat and they live in abuse from very young ages. She wonders why I'm totally indifferent and even somewhat apathetic to her in her old age.
You don't need to call them out in public. Ignore them. Daughterof1930 is right. You have to protect yourself not defend yourself.
Let them wallow in their own misery and neediness. If they want a relationship with you, be open to it. If not and they just want to use you as a prop in their ongoing drama, then ignore them.
Try to love them "warts and all" but don't be an active participant. Anything they have to say about each other, insist they say either *to* each other or not at all - at least when you're around. But old habits die hard, I don't suppose I can suggest anything you haven't already thought of.
Countrymouse is right. Your parents won't be lonely as long as they have an audience to perform to. It doesn't matter who the audience is.
It's time for you to take back your own life. Your parents are self-absorbed narcissists. They do not expect their needs and demands to be the sole priority of the entire world. No. They expect their needs and demands to be the sole priority of YOUR world and that has to stop.
You were never supposed to be their parent, which is what you are and have been since you were a kid. Me too. I refuse to be my mother's parent. Like you, I was completely used up and sucked dry from a very young age. Parents like ours don't consider how much their dumping on us from a young age affects us or how it will affect them in their old age when they really need help. When it's not just drama and performances.
Get together with your brother and have a serious talk. Tell him that you and him have to work together to come up with a care plan for your parents because you refuse to do it.
Your parents either have to go into assisted living or move in a live-in caregiver.
In the meantime, you need to learn how to ignore with love.
Stop taking their calls. Let them go to voicemail then listen to the voicemail. If it's not an emergency, don't call back. If you do decide to call them back, the second any complaining starts or your mother tries to use you as a go-between to communicate with your father, tell her you're not playing that game anymore and hang up the phone. If you're visiting in person, get up and leave.
You are not a psychologist or their marriage counselor. If you want to do them a favor, put them in touch with one.
Learn how to Gray Rock as well if you have to. This means limiting contact with them and refusal to discuss anything that cannot be answered with a simple 'yes' or 'no'.
Have a talk with your brother about a care plan for them then bring it up to your parents, If they refuse to move to an assisted senior community or outside hired help, there's nothing you can do. Walk away and let them fend for themselves. Sure, you might get some judgment from your community over it, but anyone who's ever had to deal with a care situation like yours (and there are a lot of us around) they will understand. Good luck to you and your son and remember you're his parent not theirs.
my heart goes out to you for being treated horribly and manipulated as a child. But you are a great example of the only plus side of having been exposed to a narcissist: you gained wisdom and the ability to speak up.
Thank you for your validation, for your differentiated views and this wonderful guide line:
"you need to learn how to ignore with love"
’Active Non-Listening’ has come in tremendously handy for Thanksgiving, for example!
I hope you get some more space soon, best of luck to you!!
Lol, great advice, Madison! If I manage and take it to heart I might become the next Marcel Proust or Leo Tolstoi!
Killing two birds with one stone. ;-) Blessings!
You don't have to spell it out to them... but you have given them a wonderful gift. Of your time & help - from their independent stage of life into *semi-independance*. Now it is time to step back into your own life so they can adjust to their new reality. You could think about this as a new 'gift'. A gift in honesty to help them adapt to their reality.
Will they Age in Place (with their team of caregivers) or move to Aged Care (assisted living)? This will be up to them.
Every month you stay being their solution to everything, will delay them finding the solutions they need.
Let the reality show begin!
So, I grew up with a raging lunatic for a mother who put on The Face for the rest of the world who thought (and still think) she's the nicest and dearest person they've ever met! They've never seen her sharp teeth and screeching lung capacity, nor her ability to fling pots & pans down the basement stairs where she'd proceed to hammer them up into unrecognizable blobs in short order! Nor did they have the privilege of watching her burn rubber off the driveway in the family car where she'd drive off to 'go kill herself' when I was about 4 or 5 and onward. Yep, she had and has the capability of wearing two entirely different faces, depending on who she's dealing with at any given time. And I've been The Bad Guy all along, as the only child, b/c she's painted that picture of me for the world to believe. That's what they do, these women.
I know Mean & Ugly Mom, the rest of the world knows Sweet & Lovely JoAnn.
Now that Mean & Ugly Mom moved back into my life to ruin it once again in 2011, I've had to establish very, very strong boundaries with her lest my new marriage be destroyed and my health and well being as well. She went into Independent Living with dad, then Assisted Living when dad broke his hip (poor poor her, to hear her tell it), and now into Memory Care where she's still alive at 95 in January with advanced dementia. Up until about 3 months ago, her teeth (she still has quite a lot of them) were still very sharp and her tongue was still very forked as well. Nowadays, she can't use the phone which is a blessing, but it's a sad thing to witness such a dramatic decline of a once vibrantly mean and pointedly insulting woman who can no longer BE that way; no longer use such hateful and hurtful words anymore. Or many cohesive words at ALL, in reality. That is a nice change, but the new person that's replaced Mean and Ugly Mom is equally upsetting, really. It's still a lose-lose situation for me, and likely for her, too. There's still no real relief, if you know what I mean.
People like this age badly; their venom turns to dementia which turns into something unimaginable that goes on and on and ON, for forever it seems, in some kind of karmic way that won't end well, I think. People that wear these masks are just destined to turn into a different kind of mask, one that is still hurtful and troublesome, right to the bitter end, with the dementia taking over everything, if that makes any sense. I'm rambling, I guess, but I'm seeing this now with my mother and it's mind boggling, really. She keeps morphing into worse and worse versions of herself as the dementia rages on; it seems impossible to get any worse, but it keeps doing so!
Step back as much as you can b/c watching their self-destruction (b/c that's what it IS) will take another huge toll on YOU, as it has me. It won't end well b/c it's never been 'well' to begin with. It's all a big act and when the final curtain comes down, I think we all lose. Save yourself as much as you possibly can by setting down boundaries boundaries & MORE boundaries.
Wishing you peace, Godspeed and self care as you journey through this part of their lives.
You know what you need to do - create distance so that you don’t lose your mind. You intend to stay, but your parents safety has to be paramount. That doesn’t mean it has to be you doing the caring.
Right now I’m like a micromanager, because it’s the only way I can function. I have my MIL with dementia living with us, my father having suffered a stroke in rehabilitation center, my helpless mother at her own home, and my own two small children needing a mother’s care. My MIL receives PSW care, and I alternate other days caring for my parents in two different locations.
And I’m on an extended leave from work to be able to do this…
I’d recommend you do something similar. Micromanage support at a distance. If they can’t function without your constant help and support, then you may need to move one or both of them to a place where they’ll be safe and well looked after.
It’s not your job as their daughter to support the charade of a happy marriage. Your job is to support your parents and make sure they’re looked after. But that doesn’t mean you have to be doing everything. You are there to help with this stage of their life. Not sacrifice your own life to mask reality.