She seems to resent my Bro and I cause we don't pay rent. But I fix ANY and EVERYTHING using my OWN money! Along with getting up at least 2x a night with Dad (to use Bathroom), change his diaper and assist him into bed. Make Breakfast for them Both Every morning, clean the house, anything they run short of? I go get. Cover the Majority of weekends. And I work as an Independant Partime Handyman! Cause Both my Parents require around the clock care. Dad-83 has Advanced Parkinsons and Low Blood pressure leaving him with very little mobility and can pass out at Anytime. Mom-79 has serious Dementia and gets disoriented quick. She's unable to remember conversations 5 mins After having them. And Constantly repeats herself.
My bro (youngest and Baby) has Always lived at home (Spolied & Self-involved) BUT over the past 8 months has FINALLY started helping out more, handling bathing, cooking lunch & dinner, assisting with Dr's appointments, and m a y b e 2 nights of getting up with Dad. Just started paying for Food (with food stamps). But I paid for, for Over 3 years, but no longer receive them. He DOES NOT work, and still Parties at least 2-3xs a week but his assistance? Has been a Godsend!
Our sister? (Middle child, Married and lives LESS than a mile away) always complains about us NOT PAYING RENT, or bills. I WATCH LAP TOP TV, and haven't watched cable in 9 years! And 80% of the time? I FEED MYSELF! She doesn't understand that I had to give up full time work, a home, A Social life, and the Strain of 24 hr care, not to mention the Constant Worry you feel everytime you leave them alone, or the detailed planning, of THEIR lives and your Own, AND STILL trying to spend time with YOUR OWN CHILDREN! There's A lot more, but How can I get her to understand, I'm NOT FREELOADING! If I DIDNT live with my parents, MY LIFE WOULD BE DIFFERENT. I'd still be working full time, paying my own bills, coming and going as I plz, etc. But PLZ do not take this as ME resenting taking care of my parents. I don't regret my decision at ALL. I have been blessed with Great Parents who have been together Over 60 Yrs!. Just Tired of hearing My Sisters Mouth. She's managed to convince outsiders to change their perception of me (but really? I care-less about other people's opinions that base opinions on 1 side of an argument without hearing Both sides).
Are you sure you want to continue? Check with an elder law attorney on what can be done to get paid. Some states will allow a family caregiver to remain in the home if they have cared for the parent, keeping them out of a nursing home, for a period of two years.
What happens to you when they need facility care or pass away?
So you quit working fulltime, and there goes any financial security for your retirement, right?
What is the financial situation for your parents? Can they afford live-in help? Can you at least move out and start becoming self-sufficient again?
Your sister seems very concerned about money. Is the family home worth much? What does their will look like? If all 3 inherit equally, that doesn't seem right. Are there other assets?
Who is the POA/HCPOA? Who is the executor of their will?
I have a cousin who moved in with his parents in middle age, to "help out". Their care needs were complex and overwhelming.
By the time the second parent died (in a facility, with bad dementia) my cousin was physically and mentally broken, and pretty much unemployable. He sold real estate for a bit and then put a gun to his head.
AND yes, his sibling was always critical for "not paying rent".
Your sister sounds absolutely clueless. There is a lot of it about, I'm afraid.
1. Divorce
2. Impeding homelessness
3. Chronic unemployment or underemployment
4. Substance abuse
5. criminal convictions facilitating (3).
This caregiver has already stipulated that his brother meets four of these conditions but is now trusted with caregiving. He himself meets at least one.
If you’re the sister, maybe you don’t want your parents’ care to be in the hands of these two. I mean, objectively, would you?
Because who in their right mind would give up a full-time job and their own financial security for when they get older unless there was something in it for themselves, right? I'm just saying.
Both you and your brother should be out on your own working and living your own lives and planning for your own futures.
Your parents have had their lives, and you shouldn't have to give up yours for theirs.
I don't know if anyone is their POA, but whoever is should be considering having your parents move into an appropriate facility, where they will receive the 24/7 care they need and be around other folks their ages, or full-time in-home help can be hired in so you and your brother can move out and get on with growing up and getting on with your own lives.
It's time to quit using your parents as excuses for not wanting to be adults.
The latest of these men lives a block from me so I gave him the time of day once, invited him in even. He had a place with wife and kid, then got a restraining order and then a dv conviction that he’s still on probation for which is the reason he says he can’t work at anything besides taking care of them, which suddenly became a higher priority.
This man asked so if we would come to his birthday with him and his girlfriend yesterday. He also invited his parents. I just sat there looking at his gf like…why don’t you bail right now babe while you can upgrade
If I may ask - how did you end up giving up your entire life - your job, your social life, your home - and take on the responsibility of caring for your parents 24 hours a day? With all due respect - there are other options available - especially for those who need round the clock care. You mention that your father is losing mobility quickly and has such low blood pressure that he could potentially pass out at any time while your mother has serious dementia and gets disoriented very quickly -so when you have to go do your handyman work and your brother is not around - who takes care of them? This definitely sounds like a situation in which they need true round the clock care - with caregivers who are on site 24/7 and able to respond immediately in an emergency. That is not to make light of what you are doing - it just means that maybe their needs have surpassed what you as one person are able to give them.
Perhaps your sister feels about your situation the way DH and I do about our situation. My SIL and BIL needed temporary help and moved in with FIL for a short term stay. In that time FIL went from fully independent to fully dependent and their relationship is very co-dependent and enmeshed now. He needs 24 hour care - in a skilled nursing facility now -his needs have surpassed what they can do for him. But things are complicated now and any decisions that are made for him greatly impact them and their future. It is not exactly resentment so much as exasperation over the fact that what needs to be done can not be done because he uses the fact that they are there to delay what needs to be done. And because they do not have any plans to leave, he does not have to make any plans to leave. But also much like your situation, they are burning the candle at both ends, wearing themselves out and to the point where they need help taking care of him.
And before you ask why WE are not helping - we are doing all that we can. We help as much as we can. We don´t live there, we both work full time, and live nearly an hour away. And not to put too fine of a point on it, but if they were not living there - other arrangements would have been made by now to ensure 24/7 care for him, and it would not have been provided by family. And his resources would have all gone to see that he was taken care of.
You say you are tired of hearing your sister´s mouth. But have the two of you actually sat down and talked about the reality of your parent´s care? The way you describe things - you are not going to be able to maintain this pace alone for much longer. It does not sound like you can leave them alone now as it is. You already worry. You will probably need to start hiring someone to stay with them while you work.
It sounds to me like you need to sit down and have a real talk about their future. Figure out what that looks like and what can be done. Finding a place for them to live where they have 24 hour care IS taking care of them by the way. It is admitting that you cannot possibly take care of two aging adults who need round the clock care by yourself. There is absolutely nothing wrong with that.
Also, show your sister this post because I'd like her to know what 24-hour help costs. I did one live-in case in the early 2000's where I split the week with another aide. It was private-pay (always cheaper than using a care agency) and my pay was around $880 a week. More when it was my week to work the Sunday. That was a long time ago. What round-the-clock would cost today for two with serious needs?
Tell your sister that for both of your parents to be placed in the poorest quality nursing home in Connecticut would start at around $25,000 a month. If memory care is needed which the only difference between that and regular care is a locked door, costs more.
Many siblings have a misconception about "not paying rent" in a caregiving situation in which case they should be asked if they work for free and then pay their boss for the privilege of being allowed to work.
Tell your sister that you and your brother are the only way she may have some potential inheritance when your parents pass. If they were put into a nursing home everything they ever had, their monthly income, their home, and any assets they hold would be eaten up in a matter of a few months unless they're millionaires.
So here is what you and your brother do.
You call a cable company. Xfinity, Frontier, whatever today. You get every channel too. HBO, Showtime, TMC, Netflix and all the streaming services and the + channels. Your parents pay for it. Really, it seems kind of cruel to me that your parents can't even watch tv. Watching tv is a pretty big part of the lives of old folks like them.
Your food and your brother's is paid for by them too. Live-in caregivers get meals.
I truly hope you have mom and dad's POA. This way if you're the one who does the bill paying then you spend whatever you want on the grocery bill or the cable bill. Since your brother doesn't work at all he should apply for food stamps. Every bit helps.
There's no reason why you should worry about your parents being left alone because they should never be left alone. If you go out your brother is on duty to watch them and be available. Same thing when he goes out, you are there. Work that out with him.
Please do show your sister this post and let her know that the person who wrote it has been a professional in-home caregiver for 25 years. I have my own homecare agency now. I know how expensive care is. So unless she wants to move in and take care of mom and dad 24/7 herself or put them both in residential care, she needs to shut the hell up. ~BC
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