Hello fellow caregivers. She was diagnosed yesterday with FTD or early onset Alzheimer's and the clinician seems to be in a hurry for a decision. Has anyone taken part in a clinical trial to compare an investigational study drug called BAN2401 to placebo?
Has anyone found it beneficial? I will do anything that will make her quality of life better. Her neurologist prescribed Aricept but the clinician said she can't take that if she is to do the study.
Any and all advice would be tremendously appreciated.
Sorry this response is so long but felt it might help Since we have been there. Prayers for you and whatever decision you make.
But in any case, what you’re asking is so important that if I were you, I’d seek a second medical opinion.
I myself would not do it. But others may feel differently. Does your Mom have any input? Is she aware of her diagnosis? Would she have an opinion. Remember, she is getting a drug in a stage of development that leads them to believe it is safe to study in large numbers, but until it is approved it is still experimental.
Good luck with the decision.
As you know, Aricept won't cure dementia. The way I understand it, Aricept just masks symptoms. Personally, if she wants to do the study I would say do the study.