Hi Everyone!
Thank you in advance for your guidance. I have been searching this site for many years now and have always found it to be very helpful.
Recently, my mother in law has seen a decline. She would like to move in with us but I made this VERY clear many years ago (20+) that will never be an option. I have said this to her in so many words over the years and to my husband many times. Her living with us is not an option. I told my hubby the result of that happening will end in divorce and us selling our home.
She refuses to go to AL or NH. While I know that she is declining, I offer to go there and do all I can help with, aside from any medical things such as showers, bed pan or diapers. It is never good enough. She is very demanding. You all know the struggles so I don't need to go too much into detail....
My husband does not want her to live with us either but feels some what of an obligation. He told me last that the answer is a strong no. Since she refuses to go to AL or NH and he is POA, are we legally responsible for her well being? Meaning, do we have to by law take her in? Are there legal repercussions to her living alone?
She has no living siblings and only one child. There is literally no one else to help either.
He needs to read his POA. Is it durable or springing? Is it in effect now or does she need to be declared incompetent for it to go into effect?
Do you live in a "filial obligation" state?
For most of us here, if an elder has not been found incompetent and refuses to go into care, you wait until the illness or fall that puts them in the hospital. You then talk to the discharge planners about getting her into a facility,
She gets some money from her SS and pension but no other savings. She makes too much monthly to qualify for medicad but I know we could apply and they would take all her money less $100 allowance monthly. She did gift someone over 20k 3 years ago and I am sure that would complicate things.
I do take her to the DR but haven't in 2 months since all of this COVID stuff has been happening. She sees a therapist. I would for the 3 of us to go with her and all talk to the therapist to see if that would help.
She still has her whitts so I am not sure he is able to make any decisions with her consent.
You are not obligated to provide care for her in your home; do you accompany her to doctor visits? You may need to keep after the doctor to do cognitive screenings and for the DOCTOR to tell her that she is no longer safe living alone.
What are her financial resources like?
Thank you! I will look into a care manager. It gets a little more complicated....
She doesn't have any money aside from her SS and Pension which is over what is allowed for medicad approval. I know we can still file and they will take her money less a $100 allowance monthly BUT she gifted over 20k to another family member 3 years ago.
They are a dysfunctional family to say the least...
Thank you for getting back to me. We did try a social worker. She refused to listen. She thinks the best place for her, is being home. She thinks we have an obligation to take care of her. She is a nasty, narcissistic, sociopath. Her living with us is not an option because there wont be a house for her to live in because our beautiful home will be put on the market that night.
Luckily, hubby is on my side and does not want to take his mother in either knowing that she is all of the things I mentioned.
Thank you again!
From here on in, let professionals deal with her NOT YOU.
Google the term "grey rock" as a technique for dealing with people with the sorts of personality disorders you mention.
I no longer give into anything she does or says. It goes in one year out the other after many years of anxiety, stress and torture. She is one of those people who has never had a "real" relationship in her entire life. She has done nothing but push everyone and anything away from her.
Hoping she finds solace one day.......but not under my house! lol
I was a little confused about this paragraph
"She makes too much monthly to qualify for medicad but I know we could apply and they would take all her money less $100 allowance monthly. She did gift someone over 20k 3 years ago and I am sure that would complicate things."
If she makes too much and she has gifted 20k its going to be hard for her to qualify for Medicaid. The income limit is $2349. As of July 2017, the PNA went from $35 to $50 and I don't see where that has changed.
I live in SWJersey and ALs in my area are at least 5k a month. Medicaid may pay after a resident has paid at least privately for 2 years. Then that depends on if the facility hasn't met the % of residents already on Medicaid.
There is a Miller Trust (Qualified Income Trust) Where any money over the $2349 goes into the trust. When Mom passes, the trust reverts back to Medicaid. (I know weird) Its the 20k that will cause a penalty. We have a thread going on now about that. Basically, how the penalty works. Since its been 3 years since the gift, maybe you can keep her in her home for another 2 yrs and the 20k won't be looked at. I think I read its got to be 5 yrs and one month.
Sorry if I have been a downer. Just wanted you to realize how things work.
If push comes to shove, he can go live with her for a few nights a week and come home on weekends.
Thank you again!
Unfortunately we have to wait for the crisis that gets them hospitalized before they get placed into care.
I would stop propping her up and let her see how false her independence is.
I am out of patience with stubborn old people that don't care about anyone but themselves and them not having to make changes while sucking the life out of people around them. They want to do it their way, let them, that doesn't mean you have to participate in their way.
You won't get in trouble, unless you try forcing her to do something against her will. Then you could get in trouble because she has rights ya know.
I would find out about a Miller Trust aka a qualified income trust. That will help her get Medicaid. You can go to www.nelf.org to find a certified elder law attorney in your area. I highly recommend using a certified elder law attorney they do this every day, they know how to get her approved if at all possible.
Perhaps contact the relative to whom she gifted $20K to step in/step up to join in the fun? I wish you all the best as you deal with the situation.
My husband and I never had children in the 28 years we've been married. While we have a good relationship, her living with us will never be an option and will certainly end in us divorcing.
Is your husband's POA a durable healthcare POA or merely a financial? If it is for healthcare, yes, he is responsible for her wellbeing, meaning his healthcare decisions must be in her best interest, but only when she no longer has the capacity to make her own decisions. That doesn't mean moving in with you. You may feel some moral obligation to take her in, but you don't have a legal responsibility to do so. I don't believe there are any legal repercussions in letting her live by herself as long as she still has the capacity to decide that by herself. If the time comes that she no longer can make reasonable decisions for her own wellbeing, especially safety issues in the home, then the HCPOA may kick in.
The choice is simply hers....
The hospice nurse came daily (she was on hospice for 2 years) to make certain she was comfortable and she was totally at peace, and she died peacefully. Not a single narcotic or psychotropic was ever given to her because she simply didn't need it.
She was only bedridden for 2 months. But I used the hoyer lift daily and put her in her favorite chair since that was the routine. She simply forgot how to stand and could not focus on it anymore. but for 5 years I walked her daily in the park and she went 1/4 a mile. I miss taking her to the store. Oh she loved that even though she was on the wheelchair. But God I loved taking her.
It was very painful for me to lose her. I never been apart from her. I don't know she's at a better place and face it we all are going to die. She died before all that coronavirus mess hey at 90 that's good for very very end-stage Alzheimer's. Not to mention her medical management. INSULIN dependent diabetes and all, but her sugars were easy to control because her diet and activity were the same daily. Still I had to check her sugars daily...she was a lot of work. It's something you CANNOT be forced into doing.
In retrospect the most stressful thing was her bowel management. If she did not have a bowel movement in 3 days she was impacted. So I put her on a schedule so every Tuesday, Thursdays and Sundays were bowel movement days. Her feeding tube was great since I could put lactulose (she had stage 3 kidney disease for decades so you can't give magnesium or phosphorus based laxatives) in there the night before and in the morning cold coffee and she would go hours later which was like a "blow out" but hospice supplied me with plenty of diapers and gloves. Her skin was paper thin so I had no shortage of lotrisome cream which I mixed with zinc oxide (half and half) which would clear up any redness overnight. I changed her diapers about 5 times a day, everyday.
Instead of an abdominal binder I bought tube tops from Amazon which would conceal the feeding tube. She never bothered it but it needed protecting because you don't want sheets or covers yanking on it when she is being turned and cleaned. FEEDING TUBES REQUIRE CONSIDERABLE AMOUNT OF CARE. I opted to get one in mom so she would not die of dehydration which is a very slow agonizing process even with hospice. It can take 2 to 3 weeks to die of dehydration. Mom was spared of that! Her needs were met in every way!
The only time she moaned from discomfort was turning and cleaning her up. She hated that..but she could not just lay in her own excrement. When done she was calm as she could be. Still, when she died her skin was in perfect condition. My brothers knew because of my care mom lived years beyond what she would have, and mom had good quality of life right to the end. She knew she was surrounded with love, and familiar surroundings. THAT is something I can take to my grave. I did all of that because love mom and nothing else in this life mattered to me.
I'm carrying on. Living alone, I have a job and getting my Master's degree.
Nobody can force you to be caregiver
That means keeping her safe.
Making sure she is cared for.
Making sure her needs are met.
As a son his "duties/obligation" is the same goal.
It does NOT mean he has to bring his mom into your home.
As a HUSBAND he also has to do what is right for his/your marriage.
You have made yourself crystal clear on the subject and he apparently also agrees with you.
If your husband is acting as POA that also, to me, makes me believe that his mom can no longer make safe decisions for herself. I am guessing she can not manage her finances, is no longer safe to remain alone, WHY allow her to make the decision on where to live?
This is not a decision she can make. Look for a facility that will care for her, meet her needs now and in the future. Assisted Living maybe but, and you do not say in your profile or in your post, I am guessing dementia so Memory Care would be the best option if that is fitting.
Yes she will be angry.
But placing her in a facility would eventually happen IF the scenario you paint came to fruition...
She moves in, you divorce your husband because of it, can he care for her by himself? Answer is probably no. So she would probably go to a facility as an end result
I suppose the other option might be:
With moms vast fortune build an ADA accessible in-law suite and hire 24/7/365 caregivers for mom.
(above said tongue in cheek)
I cared for my Husband for a long time while I was caring for him I decided that I better do something for me so that I NEVER put kids or relatives in the position of having to care for me. I would not want just this type of argument to play out because of me. I made the smart (expensive) decision to buy Long Term Care Insurance. I cringe when I pay the bill but I know I can stay in my house and someone will care for me without having to burden friends or relatives with that task. I would not want to put this on my kids! They have their own lives, their own families to care for.
I would bet if you asked his mom 50 years ago would she want her son to give up his family, give up his marriage to care for her she would have said no.
I am NOT in favor of providing hands-on care unless someone wishes to, has the capability and support to and the person in question can be reasonably managed and cared for. My parents and my mother's sisters took turns caring for my grandmother, but she was easy to care for and did not have dementia. They were also much younger than we are and she passed in her mid-late 70s. Our mother is now 96, to be 97 in a few months and is NOT easy to care for, has dementia and can be difficult with us (not so much with staff! they actually like her!) I knew even before dementia kicked in that I would not be able to provide her care, for MANY reasons, mainly physical and logistically. My brothers are really NOT a good choice IMO. She has the funds, I manage everything else for her and all is good! No signs of the virus in her facility (IL/AL/MC)!! She gets better care there than we can provide and the place is nice enough that I would choose to live there, if I needed assistance.
If those personal tasks are required for her, it would seem someone already is doing them (a person needing a bed pan probably can't position it on their own). Why not increase the hours of whoever is helping now?
If I'm way off base on her needs, sorry.
I know the day will come where she isn't sadly though and she does expect me you do it. I have politely told her, I wouldn't do it for my mom and I will not do it for you.
He has to send your MIL a letter (preferably certified), and then send letters to any other people or Drs that may have a copy of the POA on file.
The letter can just be short and to the point. I went to an elder law attorney with the same question your asking here, and received this sound legal advice, because I was at my wits end with my sister, and felt trapped. I wrote the letter but I never sent it, and grateful I didn’t because shortly after I wrote it she broke her hip, and ended up on LTC at nursing home. Thankfully the POA was then an asset to have to be able to be an advocate for my sister.
As noted in my post, POA can be assigned to anyone, not just family. An unrelated person, incl attys, can be assigned, but those people certainly would not have to take the person in, or move in with them.
I also pointed out that having POA does NOT allow you to force a person to do anything they refuse to do, EVEN when dementia is involved! Our mother refused to consider moving anywhere, but the EC atty told us we could not force her to move. You lucked out with a medical necessity. In our case, it took a fib related to a medical issue (cellulitis developed just before we planned to move her, so YB used that to make a fake letter from 'Elder Services' at the hospital who did the Dx and treatment that told her she moves to a place we choose or they will place her. She was madder than a wet hen, but reluctantly went with my brothers.
This sums up what I was going to post about POAs - basically they are a way to allow someone to sign documents and make some decisions for a person who can no longer make those decisions or understand what they are signing. The document may/may not specify what those duties/capabilities are, but it does NOT mean you have to provide the actual care, in her home or yours. They are certainly NOT documents that say YOU care for a person. Even having court appointed guardianship doesn't require you to take a person into your home or for you to move into their home - some guardians are not related, just appointed by the court.
Think of it this way - if a person has no family, but needs a POA and/or guardian, someone else, even an attorney, can be nominated by the person to be their POA or guardian. Do you think some unrelated person, esp an atty would take that person into their home? NOPE! So, rest assured being POA does not have this requirement. It is only about stepping in for decisions and/or signing paperwork for someone who no longer can. Temporary POAs are similar but they are generally for one purpose only - for instance, I assigned POA to my atty for closing documents when I sold my previous house. Her Power of Attorney ended when all documents were signed.
Additionally, you say she is "competent", but no real description of her needs. For the most part NHs are for those who need specialized nursing care. Sounds more like she would need AL, if you can get her to consider moving. Specialized care is NURSING care, not just help with ADLs like bathing and toileting. Once the restrictions are lifted, many ALs offer free lunch with a tour. Perhaps hubby can take her to some.
Filial laws - these are rather archaic. For the most part they have only been used in a few cases, to the best of my knowledge, and are generally invoked by a facility that gets stiffed. The case in PA involved a woman who lived there Medicaid pending, but then she left and moved out of the country. The facility used the law to recoup their cost (understandable.) The courts DO take into account how much a child of the person makes and how this might impact them, i.e. they would not impoverish the person. The decision in that case was (not sure if it was appealed/finalized) the son had to cover the costs.
The gifted money will cause issue with Medicaid. Most, if not all, have a 5 year look back, so that 20k would disqualify her until that amount is used for her care. Although hubby *may* consider staying in her home from time to time, wouldn't it make more sense to gradually introduce some CNAs? If she doesn't need assistance, just "company", I'm sure once the virus situation gets better you could hire someone - may take having hubby there initially, until she finds the person "acceptable" and/or gets used to them being there.
One more important note about POAs: Some people will tell you to get and/or use POAs to move someone. These documents do NOT give you the power to force someone to do ANYTHING they refuse to do, unless specifically designed perhaps. We had them in place long before it was needed, but by the time our mother developed dementia, she refused to consider moving ANYWHERE and after a few months of having CNAs sanity check (just check on her, make sure she takes her meds from locked dispenser, etc), she refused to let them in. We, despite having POAs, could NOT force her to allow them in OR move anywhere, per the EC atty. Her plan before dementia was to move to AL when she felt she needed it, but that went out the window! It was the LEAST acceptable choice, although she also refused to consider moving in with us as well. In her mind, she was fine, independent, etc and nothing we said would change that. In the end we had to find a fib to get her to move (atty recommended guardianship, facility we chose would not accept committals, so we had to resort to another method.)
Your MIL sounds as stubborn as my Papa. Eventually some event at home will put them in the nursing home for good. Till then, it’s a wonder we don’t all drink. Good for you for standing your ground!
I'm very sorry to see your mother-in-law's situation. Her apparent behavior makes it very difficult, if not impossible, to receive help, and COVID-19 just complicates life further. May you get help from her elder care attorney, if she has one? Sorry that a social worker or ombudsman cannot talk with her.
Her behavior and its repercussions is HER responsibility as an adult, if she is still competent. Please don't give in to her nasty demands or let her bully you or your husband. Just leave her alone in her own house. If an injury or illness emergency happens, call 911 and let the experts deal with it!
My Best Concerns, and Good Luck!!
Caregiving is a huge undertaking, and it has changed my life in many ways. I have encountered so many crazy situations and challenges that I never thought would happen: caring for my grandmother during a pandemic, a bedbug problem brought in by the HHA, dealing with my grandmother's anxiety, her pneumonia, eating issues like dysphagia, and countless other things. In my opinion, this is the hardest job on the planet and definitely NOT for everyone. This is a fact.
That being said, you and your husband have already established that hands on, in-home caregiving is not within your capability, and that's fine- you can't do the impossible. So with this in mind, there are two options:
1.) She stays in her home and gets help in. Yes, there's the risk of God forbid something happening that the doctors say "sorry, it's not safe for you to return home", but she made her choice.
2.) Convince her to at least look into assisted living.
Unfortunately, we cannot force our parents to do things they don't want to do. They have to somehow come to that choice on their own, if possible. I can't make my grandmother use a Life Alert button or Stair Lift or shower chair because she refuses to use one. We can't do the impossible. So until then, just continue to closely monitor the situation and take things one step at a time.