It has been two years. I have cared for my mother in my home for the past two years. She has cancer, more specifically, Multiple Myeloma. She has become bitter and abusive and extremely negative. I have tried as hard as possible to "detach" as all the experts say but my own mental health and physical health are at risk when I don't receive her cooperation and instead receive verbal and emotional abuse. I would like a pat answer when she lashes out at me that will keep me from showing my hurt yet will make her stop.
Could your Mom may be getting bitter and angry at the disease, at the prolonged time it's taking - realizing there may not be a reversal in her condition - that it may get worse? At some level of her awareness, she may be feeling - physically, emotionally or spiritually, that her independence and total/absolute reliance on you for everything, is not temporary -- but a permanent situation. That reality is absolutely scary, to the core of one's being. She's blessed to have you -- she's not going through this alone. Sadly, it also makes you the one that gets hit with the 'flings and arrows of outrageous misfortune' that she has no other way to "get it out". She can't express it. Fear is very hard to face, and yes, it makes us angry on many levels: sometimes even causing us to hide from time [prolonged sleep, lethargy, etc.]. Anger, abuse and negative barbs/emotions can come hurling out as the only way that she subconsciously is dealing with her cancer. Cancer patients [or anyone with longterm debilitating disability] usually end up with sleep disorders, fibromyalgia [very real, debilitating whole-body pain] and anxiety. Her doctor can prescribe pain and anxiety or mood stabilizer meds. Call the doc. You - and your mom - need her to be on them. Could there also be a vitamin/mineral deficiency? She doesn't need to go through the controllable ride-along diseases that are obviously causing her even greater discomfort, and manifesting themselves in anger.
The situation needs to change: i pray things soon turn around - at least to the level of polite meaningful please-and-thank you's.
If she likes flowers - can you put a small bunch in a pickle jar in her room? Refreshen them when you grocery shop: some small bouquets are about $5 - small price to cheer up a room or gloomy day.
Can you introduce leisure time hobbies/activities, such as music/singing, movies, jigsaw puzzles [even the 100-pc ones], card or dice games? Can she help you with chores - even folding laundry? She might appreciate 'contributing' to the load of chores. The 'leisurely time' would give you the chance for one-on-one chit-chat, and perhaps she'll soon let down her angry guard and open up to you about her fears. Be prepared for the leisure time to be the window to deeper conversations. She may need to discuss "unfinished business" that is really necessary to tackle. You may even need a letter from her doc to present to the bank, to the effect that she isn't able to handle her financial affairs - the doc will do those if you have POA. i paid way too much of mom's med expenses last yr that i will now not be able to get reimbursed: but i could't leave her home alone. That way you can still pay her bills from her accounts, manage her affairs, while you still have time/access to do it.
Also, you can honestly say, "Mom, i love you too." Just add on: "i really am sorry you are going through this, but i'm here for you." That might take the fire & dagger out the bombastic atmosphere. Perhaps she'll realize that you still see her as a person / your mom -- sorry if that sounds odd, but the disabled/affirmed live as patients - not as people - with unfulfilled dreams, or even quash the wish to go for walk, do gardening, or go for a car ride. Along the way, while being your mom, she taught or demonstrated to you compassion and kindness. Or if she lacked it, you learned it by seeing the darkness, longed for it, and wanted light/positivity to shine. Otherwise, you'd not be the compassionate, caring woman you are today.
Can you please isolate 1 hour a day to YOU? Do whatever you want to do during that hour. Keep it the same time each day if possible - for YOU. If you choose 10-11am - don't put it off for later: take it then. Otherwise it soon becomes easy to forfeit. i found 7-8p ideal. Mom had her dinner and meds, [and i was exhausted - sometimes, falling asleep so i learned to set the timer], not yet ready for the next round of meds or hygiend/cleaning, and she understood, because she took "me time" her entire adult life, to sew, craft, read, pray, write, whatever she wished to do: without interruption from her 5 kids. It can even be a time when her favorite TV show is on. Please, bf, Don't let yourself burn out, or you'll not be there for yourself, nor for your mom, nor for anyone else. Lethargy and other undesirable traits have a horrific way of sneaking into our days - like undisciplined thinking. http://play.simpletruths.com/movie/oil-for-your-lamp/ , Blessings ~ and there are so very many good suggestions, print the replies out so that you can read them in your quiet time for emotional fortitude, knowing you have the support of so very many spoken and unspoken supporters behind you. You're not alone ~ let us know please, how things are going ~ i pray that the myriad of unpleasant hurtful memories turn around quickly to pleasant days and treasured memories that make you both smile and laugh. God bless you and guide you. crickett33
Criticizing me is too easy. We both hate our lives. What can we do to make life more pleasant? Ice cream? A game of cards? Visitors? If not, I am doing for a walk." Catch your breath. Wait for her reply. If it is nasty, leave and go for that walk.
Since you may be dealing with the fear of limited time, I think I might enlist the services of a counselor. A person that you both could talk to and share with. I would explain upfront to the counselor that you want to share with your mom how her abuse will not be tolerated and that you realize she needs a safe place to vent. Provide her with those outlets so she doesn't have to take it out on you.
I might also explore with mom's doctor to see if her brain could be effected due to the cancer. Have they checked? If it's within her control, I would set some boundaries with love and kindness, but stay firm. Verbal abuse is never okay, even when the abuser is sick. (Unless they have brain damage and have no control over their behavior. That's different.)
Could you try "It sounds like someone got up on the wrong side of the bed this morning." I would want to knock her off balance, and if possible, make her laugh. That's a different task from detaching. If you can make yourself the parent of a tied, sick toddler, and not the abused child of an unloving parent, you will have and feel more power. I hope. Best wishes to you.
This is so hard, I know! May I assume that this was not her normal pre-dementia behavior? She may no longer be able to control herself, not matter how much she loved you pre-dementia. It may also be that she has something physically wrong (i.e., UTI) that is provoking the outbursts. Each patient is so very different, as are family dynamics. I cannot offer specific advice other than to remember this is not the same person who raised you, and you cannot control her or the progression of the disease. You can only control your reaction to them. I'm still learning how to do that for myself, but remembering how important it is for me to take a break as a caregiver (without guilt!) was a first step.
My mother was recently admitted to a memory care facility, as it was no longer safe to have her at home. The improvement in her mood and health has been truly amazing! She is active, social, and although her memory is not better, she is, for the most part, enjoying her life more than being stuck at home alone with my father.
My point in all of this is that my Mom was suffering from disassociation and it turned into depression. I pulled her from an environment that she was used to for 40 years into my situation. She would call my brother and tell him things that weren't true partly because it got her the attention of another person and partly because my Mom's memory is and has always been a little fuzzy. The only familiar things my Mom had with her during this time was just her bedroom items and some clothes. It took my brother's observation to see this and he was my support system when the rest of my siblings had turned against me claiming I was robbing my Mother blind. Unfortunately my brother passed away last year.
I would try to do things with my Mom and still do this once or twice a week I spend time with her. It is just her and me. Sometimes my younger son will join us but he is in his teens and he spends less and less time with us. If you have family photos as I do, my Mom has boxes of them that are unmarked or the markings are faded. I sit and go through some of the photos with her to have her tell me who is who in the pictures. It really helps her as she loves reminiscing.
Some of the names and faces have faded from my Mom's memory but she still loves to go through the photos. She has also started writing down her memories from when she was a child through her adult years. Things like who she worked for and when to when she graduated from high school. My Mom never graduated as she had become pregnant and married my Dad. After my Dad died (they were married 54 years) she decided she wanted to get her GED. She was the oldest member of the class and graduated with top honors at the age of 82 and she had also remarried. My Mom is now 91 and her second husband passed away several years after they married. Both my Dad and my step Dad passed away from cancer in the family home. Another reason I wanted my Mom to move from the house as she was very depressed and missing both men in her life. When people suffer from depression and are removed from familiar surroundings such as their home and moved into your home it makes them angry. Put yourself in their shoes and think about how it would effect you if your child did this to you. It is very hard to give up your independence and to also have all your stuff taken away from you.
You also need to talk about it, as I did that with my Mom just 2 months into her living with me. It gave her a chance to voice how she was feeling and for me to tell her that I understood. She stopped being so bitter and was more open to enjoying her time with me and my family. It didn't get easier with her living with us at that time as it is still a hard transition for both you and her.
I was lucky as my Mom was able to move into her own home again. Another thing that I think is really important too is that Mom goes to the Senior Center every day. She eats lunch there and several of them play cards. They also take day trips about once a month. I have actually been on one of the trips with her. They have fun on the bus plus they get away from their normal activities. My Mom loves being around others her age and it gives her someone else to talk to and she is no longer angry. You should check into Senior activities in your area. Some will take patients with mild dementia. I know you said your Mom has cancer but if she is able to spend some time with others her age may help her.
Sorry I didn't mean for this to be so long. Just wanted to share my experiences with my Mom. I take my Mom shopping every Saturday. Sometimes she will buy something new sometimes not. We go and get our nails done or get pedicures or body massages once a month. She loves to get her hair done once a week. Be creative with her and it will help.
My brother's wife, she is my best friend, her Mother came to live with them about a year before my brother died. She was 98. My sister in-law and her Mom go out to eat once or twice a week. They go to church, get their nails done or pedicures about once a month or so. Her Mom will be 100 this year but if it weren't for her Mom my sister in-law would have had a harder time getting over the sudden death of my brother. He had a stroke and passed away a week later.
My sister in-law still works a full time job. She comes home for lunch every day. She also has 2 "Visiting Angels" care givers come to her home. One comes every morning and the other every afternoon. They help with her Mom's daily activities and they keep her company. They watch TV together or read books, especially the bible as her mother was a preacher. My sister in-law also is a member of the church choirs so she can enjoy some time on her own. Her one brother is able to visit on weekends once a month which gives her a chance for some down time too. Getting family and friends involved helps too. My sister in-law has a neighbor who will visit with her Mom several times a week in the afternoons. As the saying goes "it takes a village to raise a child" why not have the village help with your aging parents too.
One more thing, my Mom loves to hold a party at her house every year for family, friends and neighbors. My Mom's neighbors love it as it gets them a chance to know each other and they also watch out for my Mom too. It also gives my Mom something fun to look forward to since she no longer takes vacations. She loves to sit on her back deck or front porch in the summer with her dog. Pets are an important part of your parents lives too. If you don't have a dog or cat you should consider getting one. It is amazing what a pet can do for any family member not alone an elderly one.
Speak to her DOC, is she in constant pain? Depressed? Could Medication help to give her some relief?
Good Luck , you are a trooper!
If you can get everyone on the same page ahead of time, that's going to be the first step. When you're sure everyone's on the same page and supporting you, that's when you want to arrange the meeting. What what happens to write down every rule that your family has agreed on. What you need to decide before the meeting is what kind of consequences there will be if any of the rules are broken. Taking proper steps to gain respect is key to running a happy household
and care for your safety and
health & under the circumstances there wont be
many persons prepared to give up even 1 hr of their good life so you can get a break! Regardless you will never be the same! Nock on every door ! Ring everybody ...family & government bodies to get real physical help & advise!! Once you do that you will know what to do! Cause your health like mine will get worse! And no thats not part of the package of helping someone! I recently started telling mum she needs day respite ! & community day
outings & what she does to me is unacceptable cause mothers do not verbally & emotionally abuse their daughters & ruin their daughters life! And say evil things to their daughter!
One other thing that works besides the many home respite ladies that now walk through home is ..
And you better believe it works is "leaving" , leave the house!! When mum is at her worst ! I used to think she needed me & had to stay with her! Not true!
You've gotta leave the house CAuse whatever happens .It would be inevitable !
Its gonna happen with or without you!
So leave the house now & save yourself
She had a book for me to check out, I have to find the title again, but the firs sentence and the last sentence were the same: JUST LISTEN...... So now when I pick up my kid from school, I just listen, and most of the time it is a silent ride home......until I am spoken to. Hang in there..
Have you told your mom how her remarks hurt you? Have you told her that you don't deserve to be treated in that manner? You wrote that you don't want to show that you're hurt. Why? Why not show your mom that you're hurt?
We can't make someone change their behavior. All we can do is change the way we react to that behavior but dealing with it everyday day in and day out has to take a toll on you. Have you considered therapy? Short term, just to learn some tools to help you deal with your mom.
Do you have family support? A sibling? An aunt or uncle? Are you able to get away to rest and recuperate for any length of time?
Have you tried confronting your mom about her behavior? Reminding her that she's living in YOUR house?
Something else I've read here is just walking away. If the person is in the middle of a tirade just calmly walk away, refuse to participate in it.
My mother has been in top form the last few days with her remarks. This morning she said something and I told her that she was being ugly. I walked away to go back in my room to do my taxes. A sad thing is that her meanness has made it hard for me to stay. Life would be manageable if she could quit doing it, but it makes me dislike her so much. She has vascular dementia, which makes it worse.
I imagine that your mother's cancer makes her feel very bad and wiped out. I'm sorry she is taking it out on you. I personally know you're a blessing to her. Do you know her prognosis?