My Father has always been my rock and the only person I have ever looked up to and admired. He is now in a nursing home where he will spend the rest of his days. This has been over 5 years of caring for him and finding the best Care Home and then Nursing Home that I feel would provide the best possible care that he needs, where he would happy and safe where people do this work because they genuinely care. I don’t know if everyone feels like I do, but to put your parents care in to the hands of someone else, to me is the hardest thing that I have ever had to do. He’s my Father and have to know he’s safe happy and really cared for. So I’m one of these people that has to know absolutely everything, research, ask questions etc. before I leave him in someone else’s hands. I do think from what I’ve seen and heard that a lot of children put their parents in to Care and Nursing Homes , they are off their hands and so don’t really bother about their parents because someone else is now looking after them. I feel completely lost without caring for him at home and I feel guilty about everything even though it wasn’t my decision at all it was the hospitals decision because it wasn’t safe for him to live alone in his own house. I would have carried on caring for him solely but it was the right decision for him and he is happy. But I constantly feel guilty, but I have felt guilty about everything my whole life. Does anyone else feel and think like me?
I haven't read the other comments, so apologies if I'm repeating anything here.
Forgive me, but I don't think this is anything to do with your dad (and I certainly don't think there's reason to compare yourself with others who feel differently from you about day to day caring).
This is about you and how you cope with life. It's not healthy to feel guilty when you have nothing to feel guilty about. This is your default position, and could make you open to manipulation by others throughout your life. Especially as you have normalised it, by thinking that it's part of your personality, along with the due diligence that ensured your dad was placed in the best home you could find (others who don't feel guilt about their decisions do that, too).
I think that you need counselling to help you overcome your unnecessary feelings about guilt and your thought processes that lead you to that emotion, as if it's natural.
Cognitive Behaviour Therapy can help you confront your negative thought processes, so that you are able to stop being hampered by guilt, or any other emotion that is unnecessary and could harm your mental health.
CBT won't necessarily help you to understand why you always feel guilty. A longer therapy process is usually needed for that. If there's no past trauma to unpack, then you probably don't need to delve any deeper, and just changing how you think and feel through CBT can make you deal better with big (and little) life decisions.
I wish you well.
The most important thing is you are there every step of the way with him, and he knows this. Hold his hand, tell him it will be ok, it will be ok if you are with him, to reassure him when he is frightened and to tell him it will all be ok. Reassure him you want to make sur she is safe and professionally cared for, tell him you have a friend (me) who cares for her dad 24/7 who is tender age of 95 years, who worries she is not doing a professional job. I feel guilty if I have done the right thing caring at home with my rock too. So remember staying at home with your dad might not be the best option because we are not professional, even if we were clinically professional, it is still a huge emotional challenge, and requires a discipline of multidisciplinary teams to ensure their every care is managed. So please, please do not feel guilty, remember you are placing you rock, as the new rock you are, in safe and competent hands. The love you can provide whilst your dad is professionally cared for is being there with him at every opportunity you can. Hold his hand, tell him you love him, give him the little things he loves, give him treats of food he enjoys. Paint with him, find a new gentle craft to do together, which you can share together, watch the birds together, discuss the clouds and how to watch the weather as he looks out the window. Buy a “paint by numbers” portrait of the two of you and paint it together (this is one of the best things I have done with my dad as he looks at it on the wall, his and my hand craft together, he looks at it all the time and I am with him 24/7, although I am with him 24/7 I sleep next to him in the same room too, but this painting he has such comfort with) even though when he spwakes up at night I’m here, this painting does so much for him…). So please consider now, if you can find the time, couple of hours a day, he can take the painting with him and you can hang on the wall in his beautiful, professional, new home 💕 and your rock will have the comfort of the painting he did with you and a special connection together and comfort every time he looks at it. It’s very different to a photo and something I would never have considered in all things we have done together that this is the most special to him. It could be something to do with cognitive or emotional period in his life, but please trust me if you do this it will really help longer term (sorry to talk a lot about this so much, I just know the comfort it has given and I know it will do the same for you and your rock) 💕
Although I care for my dad 24/7 I have times of worry and guilt too, did I do the right thing, at 95 years I transfer him myself from bed to chair, am I caring for him properly, would he have been better in a facility where I could stay with him from time to time and be with him everyday and have professional support to help. So please, please remember you will have guilt no matter what you do, or grief not guilt, as mentioned by our beautiful friends below. Guilt is grief and we must not have any regrets, we take the road and path we do because it’s the right choice at that particular time, it might not always stay the right choice, and then you adapt to a new situation and a new part of you and your Rocks chapter 💕 planning is the best decision you can make for you, your loved one and the safety they need, and your planning now will aid your heart, trust me 💕 xx
Please take care and please consider the “paint by numbers portrait painting” I wouldn’t be so passionate if I hadn’t experienced the difference this little activity made to both my Dad and I, we did this two years ago, he would not able to do it now, but looks at this with such comfort and love in his eyes…so while you can, please 💕
Your feeling completely lost is understandable, but that's your issue, not his or the facility's. You can work on that, and you're here because you know that you need to. I hope you come to peace with the choices that you made for the good of your father. He's lucky to have you as his advocate as you both move forward on your journey together.
I don't envy your daughter trying to keep up with--of all ages--kindergartners. I don't see how she does it! I couldn't do it even when I was 42, let alone 62. Like you, we hope to make our Final Exits before we run out of $$$. I would hope not to need Medicaid, but if I live too much longer and need long term care, I'll be glad it's there "just in case".
I've been known to raise the volume a little myself under certain conditions, usually by means of the written word. So, if quiet is called for, it may be appropriate to bring on the good drugs sooner rather than later. . .
I did not have a happy childhood but yes, I still felt guilty when I had my father placed in a care facility. I had been his caregiver for many years and it became more than I could handle. I read a comment once here that said placing your parent where they can be properly cared for is taking care of them. This is true. Now my father has round the clock care that he deserves and needs and your father deserves it too. Try not to feel guilty. You sound like a wonderful daughter and I'm sure you made the best decision for both of you.
We love our adult children, especially our 63 Y/O son, with whom we are very close. He and his wife still work F/T but will retire in a few years. They have worked very hard for many years and have earned their retirement. We want them to ENJOY it, however that evolves for them. One thing for sure: providing hands-on care for us will NOT be on the agenda! We seriously hope that they will NEVER feel guilty about helping us choose a good facility (within our means) if our care needs exceed what can reasonably be provided in our home.
As a quintessential introvert, I would not expect to be completely "happy" in a care facility, but I've had my life. I hope that I would accept placement, if necessary, with at least a modicum of grace. (Please, if possible, let me have my own room though!)
Listen for changes in staff or procedures. Protect your father's right to choose, right to live, right to be happy. It is different, but no less a job for a family caregiver.
Watch a favorite TV show with him, watch him interact with others in the facility, watch him "be happy" and spend that precious item "time" with him.
In your case, please strive to embrace that you have made the best choice possible given the parameters (i.e,, your dad's needs, your needs, the options within our culture).
I also suggest you visit your father as much as possible. That will keep the "facility" on its toes, plus if you can develop good relationships with the caregivers, that will go a long way.
Best to you and your dad. :-)
p.s. I spent approximately 8 hours a day, every day, for about 5.5 years with my mom, who was in a nursing home (self proclaimed as "high end" and "one of the best in Palm Beach County"). While I'd say 50% of the staff meant well, management was nothing short of evil in their orientation (all about the $$$, and little about the actual care or well-being of the residents). Are all nursing homes like that? Probably not. But based on my observations and experience, most are.
What you ARE feeling is grief. It’s sad to watch someone we love decline. Those of us who thought their dad was Superman have a hard time reconciling seeing him as more frail or no longer able to live independently. And we can’t do anything to stop their decline. We feel powerless because we are!
So yeah. It’s a new normal you’d rather not have to face. Once you accept that this is the natural order of things and to take each day as it comes, it’s a little easier.
REMEMBER THIS. It is the most important quality of his life.
If you've felt guilt / guilty your entire life, consider your response 'now' is totally normal and expected. This doesn't make it easier for you to cope / deal with the situation necessarily although it might give you a glimmer of self-compassion / self-support looking at the bigger picture.
* Give yourself space emotionally and psychologically to process / feel through this huge change. One way I might do it would be to have a 'counter response' ready (in my head or on paper if you prefer to write out feelings) would be something like:
- I feel so guilty that dad is in a nursing home.
Counter thought: He will be well taken care of - much more attention with staff, managers and administrator than I could do alone. I will visit as much as I can. I will see about getting regular visitors (other family members and/or volunteers).
- I feel just awful about about his living situation.
Counter thought: He was not safe living alone. He is MUCH more - if not 100% more safer now - and he feels happy. I did good for years loving him and that won't stop. I did the right thing even though it feels sad to me.
- I wish I felt better about this transition, moving dad into a nursing home.
Counter thought: Yes, I do wish the situation was different and transitions are natural / normal as a person ages and needs more care. I did everything I could and give myself credit for caring / loving him when he was at home ... and I will continue to ensure he is getting the best care possible.
- Will my feelings of guilt ever change?
Counter thought: Therapy would be a good resource for me now. I'll check into that as I want to release this guilt and INTERNALIZE all the GOOD I did for my dad over my lifetime. I want to be as healthy as possible for myself, and for him - to be the 'best me' when with him.
Learn to interrupt repetitive negative thought patterns: When you feel guilty, counter that will thinking of the good times with your dad ... think of pleasant experiences with him. Shift out / change your mind set as soon as you can as the guilt / negative feelings won't serve you or your dad at all. You can train your mind to 'snap out of it' with intention.
What I did for my friend-companion: I bought him his favorite foods for dinner (or lunch) which he preferred to the meals served there. When you visit (or others), if food is a pleasant experience for him, let him eat whatever he wants. My "Jerry" was losing weight so I bought pizza, desserts, pastrami sandwiches (which he ate with no teeth) ... everything he liked.
Let me know if these ideas might support you in 'reframing' the situation and how you feel. It might be considered COGNITIVE THERAPY ... I am not sure and that doesn't really matter although that model of healing / processing feelings is a viable / helpful one.
Always reflect to yourself: The huge GIFT to you that your dad feels HAPPY.
A lot of how he feels now ("happy") is due to how you've loved and cared for him over the decades. You did good. Real good. Give yourself credit and counter the 'guilt' when it creeps ... with awareness and intention, you can do this.
Here's a hug, Gena / Touch Matters
When the fire department was called on three consecutive days to get my dad out of bed in the morning because the aide was unable to do it, I knew it was time. My father's needs increased and we were no longer able to care for him at home.
I felt sad that he got so old that this is what we needed to do but no I did not feel guilty. He is getting better care than he would have received at home. He will be 96 next month.
We have not abandoned him. I love my dad. I go back every other month for one month stays and visit every day. I want him to know he is very important to me.
It is okay to feel sad but don't feel guilty.
When my daddy got to the point where he did not get out of the bed I knew he was not to be here much longer - I took time off work, had him transferred home and for five days my siblings, friends, me and grands took care of him until he took his last breath. Yes I still wonder, I still have PTSD from it.
How do you handle this feeling of guilt - just know that daddy is safe and in good hands, you are safe and sane. Talk and visit as often as you can Facetime is great.
Know that I have said a prayer for you to relieve this guilt.
Hugs
Also, well done for recognising that you did what you could in the circumstances, therefore it was completely the right thing to do.
Wishing you well.
judy
Unfortunately, we cannot decide how end of life years work out. There is a huge need for assisted living because we are not qualified nurses or aides.
Visit often and become your dad's advocate.
The emotion for this is more like gratitude. Your being involved as a regular presence means your loved one will be first of the line ahead of childless people or those whose heirs don’t want to hear about them until they die.
Yet I don't feel it's right for me to use. To me, rocks can also appear unchanging & unmoving. While us humans change & move location through our lives. Actually.. maybe rocks DO sometimes move. Get moved by the forces of nature.
I am now picturing this steady, noble rock.. Rolling slowly down a hillside. Coming to rest near a beautiful stream for it's next stage.
I am such a fan of rocks. When I go visit my DD in Washington State, where she lives footsteps from Puget Sound, I DAILY walk the shores looking at rocks. When we lived near Yosemite I watched the rocks.
I HAVE three PERFECT rocks after a lifetime of looking, and I hold them and think on them, and their long lives.
Beatty-----------what you wrote touched me to the quick.
Thanks!
(Someone asked me what I would do on my last day. Pretty much wander looking at rocks and driftwood, how the time wore down to the beauty I see in them.)_
I, like you, was lucky in having wonderful people for parents. And a wonderful brother. And I thank goodness my brother had wonderful care his last year and one half. Every time I read extended care disasters here I thank all the powers that be for Pacific Senior Living in Palm Springs. I never SAW such dedication and love in a staff that was expected to have not just a job, but a vocation, and who did have just that.
I think you and I were lucky in finding great care. I think it is rare as hen's teeth. I think we are rare in having stellar parents and loved ones who were our heroes. You sound like me..................thankful. Quite simply THANKFUL.
My best out to you.
71 yr old man found dead at rehab center in Florida
Unfortunately, it is the buzz word of the 21st century, used without understanding its true meaning. You did nothing but support and do the best things for your father, you should feel proud, there is no room for guilt. It is counterproductive and will keep you stuck within a prison with invisible bars, all self-created.
Visit him and be happy that he is safe and well cared for.